I am 46 and was told i had M.S during the first lockdown then a couple of weeks later i lost my mum and then my nan so it has taken me time to take this all in. My family do their best to help but do not get where i am coming from. My husband is a big help would not have coped without him but he is a bit death and i have problems with my speech so when my family keep going what it can get frustrating and when some of them say i have a friend with M.S so i now all about it that makes me so angry M.S is different from one person to another it feels like i an on my own my husband try’s to help but i sit here in pain all day not sleeping at night i want my mum back she would understand just feel at times people do not get me
Hi Holly, I am not surprised you’re feeling so low. Bereavement over your dear Mum and dear Nan is just so sad. Then to have a diagnosis of MS is enough to bring you down as low as you can go sweetheart.
I’ve had PPMS for 25 years. But it took 22 years to get a diagnosis.
I lost my Mum and Dad within 3 weeks of each other, 21 years ago.
My hubby of 50 years, was in denial of my issues for a long time.
Last year, I came to breaking point and didnt want to carry on…but you know what saved me? Jesus…he came and showed me such incredible love and made me feel whole again.
Jesus will help you too, if you ask him.
Love Boudsx
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We all have friends of friends who cured their MS with positive thinking and beetroot juice and yes, it is annoying when people eagerly press on us cuttings from the Daily Mail to that or similar effect. It’s annoying even though we know people are just trying to help, or at least to make themselves feel better by having ‘done something’. But it can make a person feel even more lonely with this very isolating condition.
I am sorry that you are suffering such a time of losses and difficulties.
i do and my husband helps with this he tells me my mum is here just feel her love and think of her i dream of here my husband tells me that is my mum telling me she is still with me thank you for your kind words
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Hi Holly - we’re all sailing this MS ship together and from time to time the seas can be rough - I lost mum and dad over the last 10 years and it’s crap - miss them all the time - especially us men as no one loves you like your mum - I have a terrible painful/stiff left leg at the mo which is getting me down and these dark days do not help one bit either but feel free to talk on here and we will listen…