Quick question to the members of the fountain of knowledge some yrs ago I had a LP done as part of neuro thinking I mite have had HICP My question is : dose any1 no if when a LP. is carried out as part of testing do they routinely check for the presence of Bands??? I really don’t want to go thro the ordeal of having another 1
Thanx Lou
Yes that is why they do an LP to test for Olygoclonal Bands. This only means something is going on in your body.
Hi , they generally don’t routinely measure oligoclonal bands unless it is asked for. However, if they did before they will have the results on file. I work in a hospital lab and that is how we work. Hope this helps
Had an LP 16 years ago - they said all ok but MRI said it looked like it might be MS. Got out of Hospital and a rotten HDU unit after 5 days and just got on with life, no support, no MS nurse or network of support etc.
I had an MRI in August 2012 and I was waiting to see about another LP and I then had an appointment in Ocotber with a Neuro Consultant. He said that these days they didn’t really need to do LP’s as routine, unless the MRI was inconculsive, as nowdays MRI’s spoke for themselves.
Joy of joy am now officially diagnosed as having RRMS and am now waiting to get an MS nurse appt to make sense of it all and find out what it all means?? Thank God for this website. By the way, my foot is killing me all down one side? I think everything is now an attack - what !!! I need saving from myself - 46 years without a serious illness or operation and I am now a hypercondriact (do you spell it like that??)
Bless all of you who support the likes of me on this site. YOU ARE STARS!!!
Hi all
many thanx for the replies
was starting to get meself in a tizzy about the event 2moro a.m as this neuro i saw 5yrs ago was extremely rude and very dismissive not only to myself but also to the the collegues who dared even entertain teh mere thought of poss MS, as if any1 would choose it, but at the very least they could do their damdest to say yay or ney asap for us all
I no that there’s no easy fix or a fast time scale to speed thro for a dx but even so
I asked about the LP cus i really really REALLY dont want another 1 as im a larger lady shall we say they had some trouble inserting the needle to say it hurt would be an understatement
i dont ever remember actually getting the ful results from this other than for the neuro to say ’ oh its lower than we expected CSF level to be with susspecting HICP’
When i asked the question 'Could it be MS as the hand surgeon (who’d released both suspected CT and the Eye clinic (comfirmed ON) had both raised the question but as i say he shunned the very idea and said simply that it was prob cus im obese n to young to ‘fit’ the age range for MS
thankfully tho we all now know that the age thing isnt really a question anymore as from reading the post on here it shows no bounderies by age,race,colour, creed etc
guess we are who we are and if our brains decide that they arent gonna work properly anymore then there aint really a whole lot we can do but to pull our socks up, plaster a bloody gret smile on and get on with it lol
So anyway now comes the question of 'Do i broch the subject of the previous encounters with him and mention of MS, but only if he raises it first???
i dont want him thinking im being to pushy n narrow minded but like i said i need to know so i can try n plan thing the best i poss could esp work wise ec
Sorry waffling off at tagents now cant keep my head on 1 thing without being distracted lol
Lou
Hi Lou,
I had my dx because of MRI and my history, the neuro said I didn’t need a LP as it wouldn’t show what she would be looking for.
Janet
x
oh Janet def some hope still there for me then lol I’ll keep u all informed as to what’s what n no doubt I’ll also be left with more question than answers I’m certain all u lovely guys n gals will help me thro tho as Madone1 quite rightly says ur all STARS!!! Lou