Hey Diggo
So, welcome to the club. Officially that is. You can now legitimately wear the T-shirt that says ‘I’m not drunk, I have MS!’ (Even if you are drunk!)
The emotions you will have been experiencing over the last weeks will probably continue to seesaw for a good while. Let them. Don’t try to ‘see the positive’, ‘come to terms’, or ‘accept’ the bugger. MS is crap and it’s a damn shame you’ve picked the unlucky straw. Give yourself time to feel sorry for yourself, get angry, swear (a lot if you’re anything like me!), feel bereft, shout ‘why me?’ Generally live with the feelings.
Then the time will come when you start to read everything you can about MS. To learn how to fight the beast. Try to stick to reputable sources, such as this site, the MS Trust and NHS. Some people swear by dietary methods of beating it, there’s a bunch of books that advocate one diet or another, if you feel like giving one a go, there’s many people on this site who swear by one diet or another (I’m not one of them, but that’s because I like food and restricting my diet any more than I absolutely have to seems unnecessary and cruel - to me!)
Try to get some exercise. The stronger you are in your body, especially your ‘core’, the better you’ll be able to bounce back from relapses. You could ask for a referral to physiotherapy for an exercise plan.
Do look at the disease modifying drugs I mentioned and gave you the link for in my last post to you. I’m pretty sure you’ll be talking about them when you see the neurologist in March, so a bit of familiarity will help.
And if you don’t receive details about an MS nurse soon, phone the neurologists secretary and ask about a nurse.
Best of luck. Try to enjoy the weekend, give yourself some extra chocolate (if you like chocolate), and/or nice food and wine (if you’re more of a food person). Don’t drown your sorrows too heartily, it won’t help and will probably make you cry.
Of course, keep coming back here, I’m sorry to say it but you’re one of the MS family now. So if you want to talk, have questions or thoughts, feel free to air them on this forum board, or on Everyday Living.
Sue