lost legs

Since they upped my dose of gabapentin my legs have got extremely weak today my partner had to take today off to help me with kids lucky he did as i went out for a rollup this morning sat on chair outside and got stuck didnt have the strength in legs to get up my 4 year old had to wake him to come help me i cant walk more than 2 steps without falling i have to hold on to walls or furniture to move around the house has anyone else lost their legs to gabapentin or a relapse did they come back im so worried about being dosabled xa

Hi Sounds like your having a tough time at the mo, what you describe does sound similar to what I experienced back in oct 2012. I suffered a ‘big’ relapse as I call it where I seemed to go from being relatively fine to legs collapsing and then not being able to walk without an aid all within a fortnight! I’m still trying to recover from that relapse now, it took me 4mths until I could get back to work, even then I probably went back too early. Now 14mths on since returning to work I am much better, it’s been a long very long road to get to where I am, but even now I can’t walk for more than 10min before legs fatigue and I have to sit down, and sit down for a good hr + before attempting something else. I know this probably sounds rather negative, but if I look back 12mths I can see I have come on massively - positive thinking. Physio can help and I would recommend it, but ultimately rest, your body is telling you it needs rest - easier said then done I know, I can’t stand just sitting down when my 5yr old wants me to play or that I can see things need doing round the house! But also contact your nurse or neuro, it could be a relapse and I’m learning it’s best to get help sooner rather than later! All the best, hope your feeling better soon. Liana :slight_smile:

Yes i had a baby 7 weeks ago and had a bad relapse 8 days after she was born ended up in hospital for 4days guess im still relapsing never imagined anything like it no more kids for me! First proper relapse after dx x

Yes, I lost my legs to gabapentin. I started on a low dose and followed the instructions until I was on three tablets three times a day. They solved the pain issue but turned my legs to jelly. At that point I read the contraindications on the leaflet which said some people experience difficulty walking, so I stopped taking them and got my legs back. Not that my legs worked that well to begin with, but definitely better without the gabapentin .