Has added confusion though … I started getting really ill around 1999. I have never had a day in the last 16 years where I have felt fine like I used to.
My symptoms dissipate a bit, but never leave me and I get really bad days where I have almost every single symptom of MS. I didn’t know what MS was about until I got diagnosed with it a few months ago (that will be the RRMS part if I get you correctly) up until then it had been diagnosed as small fibre neuropathy since 2012.
But my symptoms have progressed and also in 2008 I had a CT scan and told it was clear.
When I say progressed I mean I started off with one symptom and it has gradually built up to being most symptoms.
If I go even further back to 1994 I started to sweat all summer and still felt hot in winter. Then 1999 I started getting ill when I was eating. In 200 I went from not needing glasses to permanently needing them. By 2003 I was having that along with nausea and vomiting with extreme abdominal pain. 2008 I had pins and needles everywhere from the waist down, this receded to my feet. Since then it has increased to rolling waves of pins and needles going all over my body. On top of that I have from my knee down suddenly going numb/pins and needles. In 2008 balance and co-ordination issues arose. Now my latest added symptom since 2010 are electric shock waves going through my body. It feels like I am being tazered and overwhelms my senses. I have to remain as still as possible, but sometimes that doesn’t work and every heartbeat causes a shock -which is similar to something else I get which is a sharp pain in some random area that disappears and hits me every heartbeat as well.
Somewhere along the line I also started to get random pain in random parts of my body along a line and between two seemingly random points.
About 5 years ago I was being woken up by sever muscle spasms (especially in the calf area) and in the past 3 years and especially in hot weather I am waking up with every muscle from my should to the tips of my fingers and feels very much like muscle strain -which I would get from prolonged spasms.
Then there is the low tolerance to temperature changes, unable to regulate body temperature, concentration issues, short term memory issues and this complete inability to access memories from certain periods of my life.
I think that about covers it.
Oh, just for fun …I had a stomach emptying test in 2013 which shows significantly delayed gastric emptying so I have gastro-paresis as well.
Oh and my right knee muscle spasms, it traps the ligament behind the bone, the only way to straighten it is to rip the ligament, I almost pass out from the pain. Plus theres the time it takes to get as far as straightening it when I am sweating and nauseas from the pain.
So, which one do more than likely have?