I’m new to this forum and not really sure what I’m here to say… I think I just need some advice / reassurance.
My husband is 34 years old and is otherwise fit and well. We have two children, a four year old and a 17 month old.
Basically, my husband had an MRI and the neurologist said there are around 10 patches of inflammation on his brain which given his symptoms is most likely MS. He has referred him for a lumbar puncture which is due to take place in just under two weeks time along with blood tests. Symptoms are; balance issues, stumbling, pins and needles in right hand and right foot, headaches, ‘dancing eyes’ tiredness / fatigue.
We were so scared thinking he a brain tumour or something then to be told it is MS we felt relief (at no brain tumour) but also worry as we didn’t really know what MS was. We have since researched a bit so find out as much as we can and what we can do to to relieve the symptoms.
I guess the point of the post is because we don’t know what to expect, what does the future hold. How bad is this likely to get? Am i going to lose my husband… Are my kids going to know him as he is now or only as a shadow of himself. Everything feels so uncertain and scary.
Sorry if I’m not making much sense, my head is spinning with questions. I guess I’m just scared about what’s to come.