Hi, my name is Anne, and as from today my husbands doctor has finally said he thinks my hubby has MS, 12 years ago we starter this journey, MRI’s Blood CT Electrodes, but we never got told anything, now back in Jan 2011 a rheumatologist confirmed with our doc that my husband had brisk upper and lower limb reflexes with Hoffmanns sign at the hands, movement at the neck was restricted with discomfort suggesting Lhermittes phenomenon, none of which was explained to us, I researched it on the internet, this consultant recommended assessment with a spinal surgery collegue, My hubby was assessed and sent for another MI and an appointment with a Locum Consultant Neuroligist in December 2011.
The conclusion of the MRI showed 3 patches/lesions on the brain, the consultant said 3 thing could cause it, I cant remember the 2, but he never offered the third, so I asked if it was MS, he declined to answer, and then wrote to the docs say my hubby had small vessal disease,(correct me if i am wrong but i believe this is jargon they use) since that time my hubby has been getting worse with each week, stumbling,loss of vision,difficulty swallowing,toilet problems,pins/needles, numbness, headach to name but a few, they ruled out motor neurone and have continued to treat for fibro myalgia. his cholestral was high so they started him symvastatin, its lowered the cholestral but he appears to be worse. on friday after another pointless journey to the doc, my hubby came home and said he may as well sit in a chair and die, perhaps they might listen then, at this i lost my temper, i rang the doctors and am afraid to say that 10 years worth of tears temper etc erupted, well the doc listened and invited us both in today, and the end result is that if the doctor could say he MS he would but he needed a deffinate from the neurologist so he was going to write and ask him, I asked about the 3 sets of findings, and he agreed they should have been followed up. I feel so let down not for me but for my hubsand I so want to get him a quality of life back but we seem to be banging our heads against the preverbial brick wall. does anyone know if the signs and symptons I have stated mean it could be MS at leat he might get some help.
thanks for taking the time to read this means a lot xxxxxxxxx