Hello everyone - thanks for taking the time to read this.
About two years ago I suffered an ‘episode’ where I basically suffered with blinding headaches, really bad fatigue, suspected TN and then loss of balance and my arm was constantly tensed and pulled in against my body. I was admited to hospital where they thought I had suffered a stroke and gave me a CT scan that showed a cyst on the brain. MS was mentioned by one of the doctors who originally saw me but not by the neuro that followed it up. Long story short, I recovered and nothing more was done and I was told not to worry about the cyst that it had probably been there years.
I was sent to see another neuro who sent me for an MRI because my mum had a massive bleed and they wanted to check for aneurysms. He mentioned that the cyst was in a strange place for a cyst and he would take a look at that in the new MRI.
I suffered with a few days here and there with dizzyness, on other days I would feel really tired and some days off balance but nothing lasted more than a day or so, each time I thought that if it happened again I’d see the doctor but kept putting it off.
The neuro sent a letter to me saying that there was a virchow robin in the left basal ganglia that was a normal varient and no aneurysms and he would see me again in due course.
Shortly after that the headaches came back, the fatigue and loss of balance, dizzyness and generally feeling rough came back all at once and stayed with me for seven weeks.
I went to see the doctor who said that my symptoms had become more urgent and that he wanted my follow up with the neuro expidited. I’d started looking around for answers at this point because I was becoming more and more concerned and found that I was showing signs of MS - my doctor agreed that it ‘could be’ ms but I needed to be seen by the neuro for that diagnosis.
I’m still waiting for the new appointment but I started getting better and had a month or so where I had virtually no problems apart from a few ‘wobbly days’. Yesterday I felt the onset of loss of balance, seriously tired and this time my arms feel like they are carrying ten bags of shopping each and lifting them up is hard work - I also had a few attacks of TN which is total agony, luckily they only last around 30 seconds or I wouldn’t cope with the pain.
With nothing showing up on the MRI but having had at least two seperate episodes with around two years apart do you think it could be MS or does the fact that there were no lesions rule it out?
I know that a lable doesn’t cure but at least it gives you something to work from, this not knowing is driving me insane! Sorry for the long ‘rant’, it’s just starting to get me down a bit.