My Mum was diagnosed with MS a few years before she had me at the age of 35. It's now 40 years later and she has been bed ridden for over ten years with only the use of her right hand. She has carers and lives with my Dad however he suffers with depression and finds it hard supporting her and pre Covid would often try and go away as much as he could to escape. She has a tv in her room but her eye sight is failing so can only listen to it and spends most of the time in and out of sleep. She is the sweetest person you could ever meet and it breaks my heart and soul that someone can suffer for so long. She has had such a sad life and this awful illness seems to have taken her to the brink and just left her there. I just can't stand the guilt that there is nothing I can do to make her life better. I love my Mum and miss her all the time, it's like grieving but it never ends. I have the support of two siblings which I would be lost without but obviously this affects them too and we all have our issues we have to deal with. I have kids of my own now and I realise how much she must love us and how hard this must be for her.
Im not really posting for a response but more just to be able to say the words out loud to people who understand. I have spoken with friends but it's such a difficult situation to explain to other people and with long term illness people just forget and don't really ask how you are anymore it's not really something you get sympathy for.
Thanks for listening.