[quote=“chelle”]
Today I left work early after battling through yet another day, another day where i woke feeling as sick as when i went to bed… Im exhausted in pain and feeling so sick dizzy and faint I thought I would die. I collapsed on my bed, after struggling to it and just cried, but cried softly as i didnt have the energy to really release my emotions… thats when you know your knackered - hey!, and asked god to just take me now! as Im so tired, sick and tired of trying to be normal and cope when all the time I feel so unwell, and in saying unwell I am seriously understating just how bad I feel, its relentless and living this limbo hell is a nightmare. [/quote]
Chelle - these words struck such a chord with me this morning! To be honest I realised that I’ve been feeling like that for the last few years - some times are worse than others but never ‘well’ - constantly hoping to improve as you feel you can’t cope with or take anymore - but instead you just feel like you are getting worse & worse!
It’s so familiar - not just for me but for so many of us on here xx I so wish I had answers - a magic wand that gives a huge blast of ‘wellness’ to everone - all I can say is hang on in there - you have to believe that you will get there in the end xxxjenxxxx
Chelle that is exactly how I feel, I want the old me back. Thank you all so much for the support I feel better knowing its not just me that feels like this.
Hey Jen & Anon,
Well I made it through the day today and even though Im completely knackered now im at home… at least i made it! I definately won today and its those small gains for me that make it all worth while…
Thanks for your words Jen, we will make it! we have to and Im not going to give up without a fight x Keep strong guys x
Not having a good day I was meant to go out with a friend but I am so unsteady and numb that I cancelled. When I told her why she said “not again there’s always something wrong with you you should snap out of it” I wish I could it has upset me so much and there is nothing I can do
Dear Anon
You did absolutely the right thing. With my last up heaval of symptoms over doing it just didn’t help. I ended up cancelling on an outing I’d organised months before with a friend. Something I had really wanted to to as I don’t see enough of her. My friend was miffed but said she understood as my health had to come first.
That’s what friends should be like - you shouldn’t be made to feel bad. I don’t know how much your friends know or understand what you’re going through, but the ones that matter will come round and understand. If they don’t they’re not a friend worth having.
The symptoms we experience aren’t just like the common cold they’re much worse and in some cases could impact us severely. Don’t ever feel guilty about putting your health first. I did even though my partner was telling me to go and I knew I’d be letting my friend down.
Reemz
X
Has anyone ever got to the point of just giving up fighting and putting up with it. I still feel really alone and there just doesn’t seem much point anymore. Life is getting so hard
Hi Anon
Yes, I gave up fighting for many years from 1986 to 2000 as I was not getting anywhere at all. I never even knew about MS or limboland then or that there actually really was something causing me to feel crap all these years. I gave up because I went to the GP for years and all he did was keep sending me for a blood test which always came back perfect.
So, I learnt to live with things and adapt, but my marriage went as a result. Then, five years ago all the weird symptoms came back with a vengeance and all at once, together with new symptoms. So, I started fighting again and have got further this time, although still undiagnosed and probably not likely to be. However, I will not stop now. I’m so bloody determined to prove that there is something destroying my body I will not give up, although it’s so, so hard when I feel drained and exhausted. Sometimes I can’t even hold my own body up, I just flop like one of those children’s toys.
But I will not give up now, it’s gone on too long. I’ve also told my children that if I die undiagnosed I want a post mortem so that a diagnosis can still be establised posthumously. Not that I’m planning to go anywhere anytime soon!
Limboland is the most isolating place to be as family and friends just don’t get it.
This site is wonderful and I’m so glad I found this website (can’t even remember how I ever got here actually but so glad I did). Everyone on here understands and will support you. I have found it reassuring every time I’ve had a weird symptom or remembered something strange that happened to me I have looked on here and every time I have found someone else who has experience the same thing, and that give me some comfort on this lonely journey.
Please try and stay resolute, don’t give up. Wait till you feel stronger before you fight on but keep the thought in your head. I really hope you start to feel stronger soon. With all my best wishes Dianne x
Hey Anon,
I do know what you mean and I am so sorry you feel like that right now. There’s a huge community here so please don’t feel alone, because you really aren’t when you have us lot! It’s really horrendous being stuck in Limboland - at times I thought I was going out my mind. It’s a pretty lonely road to travel at times so it’s really important to seek out good friends, good times and treats for yourself. Sounds simple but I really have been there and I wish there was something I could say to you to make you feel better.
Feel free to private message me if you’d like.
Love Choochy x
You’re definitely not alone, I’m also stuck in limboland, feel terrible all the time and like everything is getting on top of me.
It’s hard to get support etc from others when you don’t have an official diagnosis and you just feel so alone and overwelmed.
(hugs) Please feel free to message me if you want to chat 
Hi Anon,
Hope you’re ok…you know you have support here…I too am in Limbo…I feel rubbish most days. I have trouble with most things now. Some days I can’t even function properly. Even simple things that I used to take for granted are a major effort. You are not aone.
Wendyx
Hi Anon I empathise with you. The feeling of being all alone when you are in a crowd, crying because you feel no one understands. We have all been there regardless of being part of a family, or being single, being female or male (they cry alone, as real men don’t cry- that’s cr**) I still do when I tell what my condition is. Chose the word condition as better then ‘what up’ - that the sky. Coming to terms with this you need all the support and help and there are friends here you can talk to. Take care Mike
It has really helped me tonight to read this. I so wish this wasn’t happening to me. It is lonely on so many levels but it is good to see that their are others fighting the same battle.
Hi just as everyone is telling you don’t feel ashamed or alone. I after one brain and spinal was diagnosed as being psychosomatic, saw a neuro psychologist who suggested that if this turns out to be the case that I need to stop taking all my meds for pain. Right now if I stopped taking my meds I would be in a&e I am in that much pain. Limbo land sucks big time and I’ve had to learn to keep myself occupied with things in order to take my mind off what is happening in my body. I was too given anti depressants which had an adverse affect on me late last year and I was in a big state. I find other people just don’t get it, they don’t see the pain we are in and the fact that our bodies just aren’t right. This really gets me down especially when it’s mainly family who give me this response. Just know you not alone in feeling this way. It is a horrible situation to be in limbo land and sucks big time. I think we are very entitled to have our down days and it’s nothing to be ashamed or embarrassed about xxx
Hi Anon,
I know exactly how you feel being there myself, and only for a few months really and no diagnosis, but you will get loads of support and we can support each other. I believe that this is bound to be a very difficult time but I also am sure that it will get better as we learn to cope and get stronger. Lets do it together! John
Dear Michelle, Jowjow and Outlook,
I wanted to reply to all of you, who are struggling in limboland and to let you know that although we may feel lonely at home, on these boards you will find many others, like me, who have lived in limboland for eons and still are living there.
My story goes back a long time and i dont want to bore you with the details.
Just know that we do survive, somehow and so will you too, with good support and the right medication.
I`ll hold all of your hands.
luv Pollyxx
if I can help further, I`ll try.
Cheers poll, seen lots of your comments and think you do just great and a very positive person xx
Hi, I think I know exactly how you feel, I’m up in the middle of the night with my mind spinning, feeling the same.
Why do you not want to take your anti depressants? You say you are in pain and want the right type of pain killer to deal with it, yet you are in emotional pain too but wont take anything for that? Some anti depressants can really help with neurological pain, so it may be worth giving them a go, and sticking with it for 6 months to give them a chance to work, as they do take 6 weeks to build up in your system.
Unfortunately I can’t take anti depressants as im extremely sensitive to their side effects, but I would if it would help my constant pain. I do take tramadol every day, but really try to only take one dose every 24 hours. I avoid paracetamol and ibuprofen as both of these cause headaches if you take them more than a couple of times a week, so maybe you need to take your ADs and ask your GP directly for decent pain relief. Its sometimes hard to get them to understand how we feel, I tried hinting for months the pain was bad but nothing changed until I asked directly for more effective long term pain relief and suggested tramadol myself.
It can be overwhelming to feel isolated, with no one showing understanding. Sometimes when we most need someone else to fight our battles for us there is no one around to help, perhaps feeling as low as you do right now is the sign you have to take that its time to fight for yourself, be direct and brave and state what you want, its very scary to do but believe me it has often a really positive outcome xxxx