Hi everyone. You all seem a nice and supportive bunch on here so thought I’d post about my health problems and maybe ask a couple of questions.
A brief summary of my symptoms:
March - June 2011: Numbness/tingling on right side of body. GP thought it was likely caused by a virus. Eventually disappeared.
Nov 2012 - June 2013: Return of numbness/tingling as above. Eventually disappeared.
June 2013 - present: Strange sensation in head and on left side of body many times every day. Often uncomfortable and sometimes painful. Includes loss of balance, feeling of weakness and lack of control of left hand, slurred speech, bumping into things etc Has become worse since it began. Lasts 10-20 seconds at a time. Sometimes many times an hour. Some residual weakness/slurring in between episodes.
I have seen a neurologist and had an MRI and various blood tests. The MRI showed some lesions on my spine but none in the brain. It also showed I have a minor defect of the brain which is not likely to be the cause of my symptoms. I am awating results of blood tests and was recently called in for an additional blood test for Aquaporin 4 Antibody, although no one could tell my why I was having this test (I’m hoping it’s for elimination purposes as I’ve googled it!).
Up until the last few weeks I have been trying to be patient and positive but I’m now really struggling. I’m totally exhausted and not coping well with my daily symptoms. I’m struggling at work but afraid to be off sick. My self esteem has hit rock bottom and I find myself avoiding people because I feel such a mess. I lie awake at night worrying about losing my job and being unable to pay my mortgage.
I’m 48 and until now have had good health, a hectic social life and have always been the one that helps everyone else with the ups and downs of life. Friends and family don’t seem to understand how I’m feeling and don’t understand where the old me has gone. I’ve never felt so alone in my life
Anyway, what do you make of my symptoms? Could it be MS? Any other ideas?
Any advice for coping with limbo-land?