Hi Becca, no I don’t think you would get a firm dx with clear MRI and LP. If you have MS symptoms and they have eliminated anything else that could cause similar symptoms (and there are actually a lot of conditions that mimic MS) then you would probably get a ‘possible MS’ or ‘probable MS’ dx.
Pat x
Hi You could try What “type” of ms u have What type of dmd’s The name of nurse Is physio available What the lead time for dmd’s Does neuro recommend tysabri If so wen JC virus test & gandolinium enhanced MRI to meet NICE criteria What are olingiconal bands What a VEP test is for Can’t think of owt else and friends have probably covered most of it but take a notebook and pen 1. To write their comments (you will forget) 2. Write down questions you think of pre and post appt 3. Remember ant question is not daft Good luck n take care
Thanks for clearing that up Pat. That makes a whole heap of sense now 
Hi Stardust,
Completely missed the boat on this one but just wanted to send you hugs and to say hang in there. This site if wonderful and if I’ve learnt nothing else, it’s to take each day as it comes really and try to stay positvie - sounds like you’re in good hands too.
Alison
Hi Stardust,
Completely missed the boat on this one but just wanted to send you hugs and to say hang in there. This site if wonderful and if I’ve learnt nothing else, it’s to take each day as it comes really and try to stay positvie - sounds like you’re in good hands too.
Alison
Thanks so much everybody. I have my MRI this morning so fingers crossed! If I have no new lesions then i’m allowed to go on holiday to Turkey tomorrow. If not, I’ll be in blighty 
xxx
Everything crossed for you x
fingers crossed my lovely.X
oooh what a nightmare…i am similar stardust…four lesions on my brain in mays mri but all other tests negative.since then i have been so unwell i am mainly bed ridden.hands and feet constantly numb.constant muscle ache in arms and legs.think i’ve passed the chronic stage in this episode.now diagnosed with m.e.
apparently you can be this ill with it and it mimics ms symptoms.still not convinced.tx
Sorry, coming in on this rather late! Just wanted to reiterate what Pat said - you can be diagnosed with MS with a negative LP. Not only is it not 100% accurate, approximately 10% of people with clinically definite MS have a negative LP. They are working on more accurate LP tests, but so far there is a lot of wriggle room.
It might make the MS specialist a bit more cautious about a diagnosis, but the MRI and clinical exam results are more important than the LP.
I hope the MRI went well and you get to enjoy that holiday!
Karen x
Hi everyone So I’m in the uk still. had mare of a day. My neuro was in clinic and wasn’t able to check my MRI until I was at the airport. I have a new lesion in my neck causing the numbness so he wanted me on steroids. Turned round and came back home instead of going turkey- such a shame. I am speaking to him later so will see if we can go Monday. Two lesions in two months. Quite concerning Xxx
In relation to why LPs do not go negative during a lull in the disease, it may be helpful for someone to get their head around this by understanding the LP as a test for antibody markers for the immune response to what triggers the disease. In the same way that you will usually always have some circulating antibodies to deseases like measles or chicken pox once you’ve had them once and the immune system has learnt to recognise the virus/pathogen (the levels though will diminish gradually unless boosted by further exposure).
Hi Stardust It’s Sarah C , I changed my user name as there was 2 of us on here . I’m really sorry to hear your news and the drama you have gone through . Such a shame about your holiday , but good you found out before you left . If the neuro want you on IV steroid it’s a 3 day course in the day unit normally . At least it has explained your numbness . Hope it all goes ok . Sarah x
Thanks poppet- you live up to your name your ims have really helped me this last few weeks. I’m a bit gutted but hopefully not all is lost - we might be able to go on Monday. Keep you posted xxx
Ah thank you , it’s what my dad calls me Will keep my fingers crossed for you . If it turns out you can not Go on Monday try not to let it get you down . Getting yourself treated And feeling even a little better is so much more important . Then when u book next time and have a extra special time with out the worry of all this . Keep your chin up and please do keep me posted. Sarah x
Hi again everyone Good news I can go on Monday. I have started my steroids and had a chat with my neuro who kindly called me at 8.30pm last night so I wasn’t left hanging. I do have this lesion in my neck and he was very surprised I have relapsed again so soon (only 8 wks sInce 6th nerve palsy where u had awsipn in the brain). Even though I don’t have the Oligoclonal banding he is has marked my prescription as an acute MS relapse,although I am waiting to see the MS specialist Cris Constantenescu to make the full diagnosis - has anyone been to him at the QMC in notts at all? I’m chuffed to be going on holiday but he told me not to ‘bake’ in the sun as it slows nerve conduction and may cause me to feel weak. I am v fair so there’s not much chance of that!! I do feel a little apprehensive about going abroad but it could be just the tonic. The tests, impending diagnosis, two relapses had all caused stress… Need a break Can I ask, do steroids make you feel a bit strange? My senses seem to be a bit heightened and I wonder if it’s these. I’m on x12 5mg. Thanks for listening as usual. Hope you’re all having a great Bank holiday xx
Hi Stardust
Gosh I’m so sorry to hear this. Shame you couldn’t go to Turkey but finges crossed you can fly Monday. I guess there’s no compromise on your health though and least he’s not messing around and got you on some steroids.
Hope you feel better and get to go away.
Reemz
X
Hi Stardust That’s brilliant news about being able to go on holiday still on Monday . The break will do you good . I found with the high dose steroids that I got bad headaches and feeling really hot , also they put my blood pressure up so I got that fluttering feeling in my chest . Also my eyes , everything seemed really white , they tend to give you a bad taste in your mouth too . Hope you have a really good holiday and a well deserved rest, and that the steroids help . Take care . Sarah x
Hi Stardust
think my post got chewed then appeared later. Can see you’re able to go on holiday now so thats fantastic news. So pleased for you.
Reemz
X
Try not to worry too much about the two lesions in two months thing - RRMS often has stubbornly active periods, but it usually gets knackered after a while and goes on holiday… maybe you can leave it in Turkey?!
Kx