Afternoon each. Innit clammy and close................keep putting the washing out, fetching it in....on airer........sunshine now...oh I am fed up of it.
Anyroad, reason for my post. This was a surprise.
Had a call this morning, from MS nurse.
She reads a letter from Dr Lily out to me. Said I should`ve had a copy, but I haven`t yet.
It went along the lines of;
Dr Lily has recommended to neuros at Halifax that they should repeat my LP. To look for oligoclonal bands for MS......I may have spelt it wrong, but you know what I mean, eh?
Then if none show, go for genetic testing for HSP.
we discussed my recent letter about an EMG test done 15 months ago, which left the neuro feeling myleopathy could be another possible diagnosis.
There`s an 8 week wait for the LP. I told her how painful it was before, That was at a different hospital about 13 years ago, when nothing was found.
So, I`m still in their radar afterall!