lf l was newly diagnosed.

New diagnosis and before diagnosis
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l have suffered with Primary Progressive MS for 35 yrs now. And in that time have always hoped and searched for a way to improve my condition. None of the meds/drugs that the GP/Neuro have prescribed have helped me - in fact most have had adverse results. Baclofen/ Tizanidine/ Clonazepam/ Gabapentin all left me unable to function - felt like a cabbage.

But for the last year - l have been following the Coimbra Protocol with great interest. l joined Vitamin D Protocol North America - which has people worldwide with auto-immune diseases following Dr Coimbra’s treatment with Vitamin D3 and magnesium B2 and other vits and minerals. He has had such great results - and many doctors/neuros and nutritionists have gone to Brazil for training so that they can help sufferers worldwide. They all do skype/whatsapp consultations at very reasonable costs. The nearest for us in UK is Michael Cawley - cawleymjd@gmail.com - who is based in Dublin. Michael Cawley is a Nutritionist and is very knowledgeable about this protocol having followed it himself as he too has MS.

A good book to read is Ana Claudia Domene’s Multiple Sclerosis and lots of Vitamin D - available on amazon - book or kindle.

Now for me - so much damage to my body over all these years - but even l have started feeling stronger and better balanced. l have no fatigue and no brain fog. Not expecting to start running marathons - not just yet. But happier and more hopeful.

So lf l was ‘Newly diagnosed’ l would be looking at Vitamin D Protocol North America - and reading all the Dr Coimbra youtube vids and taking control of my own body. The treatment is cheap - no pharmaceutical companies making billions out of keeping us ill. And doctors and neuros can’t get paid for prescribing their toxic drugs.

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i got the book on my kindle.

they are very high doses!

thanks for the reminder

carole x

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If I were newly diagnosed, I would be concentrating on fitness as much as is possible. I would be trying to get as much physiotherapy as I could and concentrating in particular on building up my core muscles.

The fitter you are when relapses or disease progression damage your nerves, the better musculature you have, in particular your core, the more likely it is that you’ll be able to compensate for the damaged nerves. And that means either less disability, or more recovery from relapses.

And of course, start taking a high dose of Vitamin D at least, and Spacejackets recommendation is definitely worth a look too.

Lastly, if you are diagnosed with relapsing remitting MS, then I think you are better off taking a DMD than not.

Sue

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  • Thanks for your post sue ,I am with you about the d m d,and vitamins.and the physio .she
  • Even gave me a list of exercises to do at home so I’m building the core muscles.it does leave me ready for bed lol .anyway what is my mantra? "I must, I must,increase my ???
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Very interesting post/replies!

If I were newly diagnosed with HSP and not MS, I wouldnt be on this forum!

pollsx

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