I’m starting Lemtrada in March,after reading on various forums of peoples experiences i’m bloody terrified,would be grateful to hear people’s stories
Hi, you shouldn’t be terrified its just a new treatment after all, all treatments have side-effects.
I had my lemtrada treatment in Dec 2016 (12th-16th) and I thought it’s a good idea to document my experience on a blog for other people that are considering this treatment here: https://msjourneyblog.wordpress.com/
Also, I’m a bit lazy and don’t want to write the same thing over and over again if someone asks “how it went?” 
I’ll try to update it perriodically with some follow-ups.
Hope that’s useful.
George
I had a crazy, itchy rash that came and went and was helped by anti-histamines (how I wished I’d shaved my legs before!!) , and felt worse as the week went on - sitting around for five days makes you feel very sluggish, drugs or not. My sleep was disturbed by the steroids so I was pretty worn out by the end of it. However, within a few days I was feeling back to (MS) normal (it won’t magically remove any existing symptoms). I took it easy for a couple of weeks, got used to being careful with food and am now feeling ok. Get ready with books / films downloaded to tablet / headphones, and treats you enjoy. If my hospital is anything to go by, they take very good care of you!
I did some ‘prehab’ exercise to get myself into the best shape I could be for a week of doing nothing 
I also got some comfy cotton clothes to wear - in a bid to avoid getting too hot and sweaty. I’d aim for nervous anticipation rather than terror - plan what you can to get a bit more control. You’re being brave! Good luck xs