I’m starting Lemtrada next week on Monday and am feeling apprehensive/concerned about it. I’ve previously been on Tysabri for the best part of seven years plus, but I had to come off that because the increased risk of PML was great, it went from the possibility of me having PML being one person in 1,000 to one person in 100 and that was just a bit too scary for me. I then went on to Fingolimod but that didn’t work, and so I’m starting Lemtrada next week.
At present I am having problems with my MS, my hands and feet are numb and painful with pins and needles and I also have a severe MS hug. I can’t see properly, my eyes are blurry and my balance is completely off. I feel dizzy all the time so I don’t know what is going to happen but I’m hoping the Lemtrada will help long term.
Has anyone any experience of Lemtrada? What were the main side-effects you experienced please? Did you have positive results?
I am nervous about it. I haven’t posted in here previously and am unsure where I should place my post. Thank you for reading my post.