I had the second part of my Lemtrada treatment in November. Like all things MS, I think it can be different for everyone, but my experience
- first year, five days of infusions - itchy rash was the worst side effect of this for me, though that was improved by anti-histamines. You have a cannula put into your arm and drugs administered via that. I had this in the day unit but stayed in the UCLH hospital hotel called the Cotton Rooms. Do you go to Queen Square hospital? I had excellent treatment and they keep a very close on eye on you.
I would recommend preparing with books, audio books, downloaded TV/films on your tablet. Prepare to get a bit bored, a bit stiff and itchy! Food was ok, though it’s good to have some favourite snacks/drinks. 12 months later, you have the same treatment but just over 3 days.
I felt back to ‘normal’ (whatever that is with MS!) within a week
you need to be very careful with food in the first 3 months after transfusion to avoid getting listeria while your white blood count is very low. Also good to avoid getting colds, if you can!
it hasn’t been a miracle cure for me in the past year as I’ve had some sensory relapses. BUT it is one of the most effective treatments out there. I considered it a calculated risk to preserve my mobility etc - being able to walk properly is worth any of the side effects in my view.
Ask them lots of questions!!!
I hope that helps - good luck xx Happy to answer any other questions xx