Evening every1 hope ur all keeping as well as can be n keeping warm 
I’m suffering today big time as my title suggests its my legs again 
on Saturday I happened to mention to my son as we were walking along that I’d just realised I was moving along more fluidly yay JINX!!! as we went over some uneven ground my jelly leg returned with a bang I didn’t fall thank god but since I’ve been trying to cope with a drunk right leg again lol looks kinda funny to others I suppose but it really tires me out just trying to concentrate on just placing 1 foot in front of the other, now I now I’m extremely lucky atm because I’m still able to be mobile n this is where yet again I come up against that flipping catch 22 we decided to go upto London yest to have a look round the Winter Festival n the Chocolate Festival ( I was very good tho n didn’t buy any) but with so much walking involved tonight I’m most definately paying for it big time my jelly leg has been joined by the ever loving numb hug around my thigh n the fantastical fashionable lead boots lol I find myself having to laugh cus otherwise I’d be in tears n that’s not gonna get me anywhere is it Does any1 else have this strange jelly filled meets lead boots feeling going on with a hint of flu like aches esp in the knees??? Thanx Lou
knees are the most cussed joint of all.
i think it only happen to folk who have a good sense of humour!
i have foam feet which sounds nice but sometimes feel as though they are sinking into the floor.
maybe i shouldnt be doing those psychedelic drugs?
just kidding but i imagine that it would be the same.
hey hows that for an anti drugs slogan - have a trip and feel all the joys of ms
Hey, I haven’t yet been diagnosed but told ms is likely with my symptoms, I too have the Exact same feelings! It’s awful! I was told to rest up, which I’ve done for 2 & a half weeks, to today be thankful of a trip to Asda of all places, was happy to get out to go Anywhere! Anyway I’m now too paying for it! It’s the exact same way I explain it to people too “jelly legs” haha Hope you return to “normal” soon as do I!
Hi all,
I was diagnosed with MS on friday gone and it all started by numbness on my legs and left index finger and thumb tips. Then MRI showed up the plaque. I am 29 years old and know nothing really about MS except for what I have now read in the pack they gave me. I have an appointment on Wednesday with the neuro care nurse to see what meds I will use. I am so confussed and completely knocked back by the shock of this diagnosess. I have a few questions if anyone can help?
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Do we have to inject meds or is there tablet form?
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Will I find out on Wednesday what level I have?
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How does the nerve conduct help/notice.
4.Are there any do’s and don’ts with MS.
Any help would be gratfully appreciated.
Thanks
hi ladies first and foremost a sense of humour is definately a MUST lol Hazel hi sorry for ur news there are some fantastic and very knowledgable people on this forum who are a lot more capable than myself to even try n answer ur questions I’m not yet dx myself so I’m not really able to help n give u the correct facts ur after knees are burning n buzzing like crazy now it’s like having full on flu just in those joints I have tried resting was signed off from work for 3 wks I went back last Monday n it was a killer lol but I’m here I survived n so did the kids haha I’m a school caterer sobi have loads of kids n they were so pleased to see me back again which is lovely really helps lift ur spirits if I’m honest keep going strong girlies n keep warm oh n be very careful out n about don’t want to read about any broken bits that turned out not to be made of jelly after all lol "/ Lou
I really really really want to get back to work! I’ve been signed off for a further 2 weeks from having 2 & a half! Which also brings work worry as I had started a new job, my probation was almost up at the time of being signed off, although my manager is very supportive as everyone could see i was struggling along, i work 12 hour shifts with dementia patients & I could only manage half my shift on my last day of work back mid November but I don’t know how long they can be supportive for whilst holding my position?! I would totally understand but would be completely gutted if I got the sack, there’s not a single thing I can offer to do to even make an effort as I can’t drive at the moment due to my jelly legs & the pressure of using my feet on the pedals is such a horrible feeling & the pressure doesn’t last long enough to keep up a speed anyway haha! Anyway, I think people are under the impression I should be better as I’m not at work & resting But I’m being given nothing to help with my symptoms & whenever people ask me “how are you now?” My reply is “the same” but I feel like they think, how?! Does anyone else feel like this? Is anyone else being given anything to ease fatigue, numbness, tingling etc? Sorry to have a moan on your post 
Mrs C moan away if it helps u hun I don’t mind I felt exactly the same with reguards to going back to work my boss was/is very understanding and I can’t thank her enough for that she’s been at my unit covering me everyday From 1st day off n is still there supporting me into phased rtn but I felt n still feel somedays that ppl would just stop flipping asking if I’m all better now n saying " oh u look ok n so much better" so I smile n say thanks etc etc when inside I’m thinking if only u could all see me after a working day when I’m grabbing hold of furniture n walls to help me shuffle along indoors trying to get up enough momentum to get up the stairs before wetting myself n praying when stood at the top that the overwhelming feeling of slipping/falling down them n face planting to hallway floor ( I haven’t thank god lol) but hey " I’m fine me so thanks for asking AGAIN" lol I’ll be honest tho I did miss work n I’m kinda glad to be back but when I’m so tired after it all and struggling as above I can’t help but think I maybe should’ve waited a bit longer but I’m nearing the end of my Full Pay Sick Pay n can’t afford to go onto half pay so I felt like I had no choice really I don’t get any help with meds etc my GP wouldn’t even give me painkillers cus she said I had to wait until I’ve seen the Neuro who incidentally I saw 5yrs ago n he basically poo poo’d my symptoms said they were down to Carpul Tunnel n High Intercranial pressure which was most probably due to me being obese " go away n lose weight or ur eyesight " was all I got despite the lumber puncture results saying my pressure was low the opthomologist and the surgeon who did my CT release both said at the time " oh so u have MS" n I was saying no cus that same stupid neuro had said I didn’t fall into the correct age group so he wasn’t even going to entertain the idea it would seem But anyway I’m letting my fraustration out now lol I’m just peeved that I’ve got to see him again n he’s going to take 1 look at me n think " yer she’s fat that’s what’s wrong " hell I even doubt myself somedays n wonder if I’ve imagined all this for the past 12 wks n it’s all just been because of a virus but then I think I wouldn’t still have numbness in the underneath of my left foot would I if this were the case or indeed Jelly Lead Legs lol or a numb right thigh when I’ve been walking for a while and many other bits n bobs pins n needles strange goose bump type feelings, feeling like my food takes forever to get down my throat after swallowing it etc etc etc yawn I’m boring myself now lol trying to make blinking sense of this all Time to keep smiling onwards n upwards n all that bobbins lol Lou
Hi Lou
The first thing I would ask is is your neuro an ms specialist? If he isn’t then I would be asking to be referred to one. They are all a breed unto themselves but at least you wouldn’t have to put up with his mindset.
I have to say I have sort of learnt to embrace my fat as the injections hurt less in the fat bits…but thats a double edged sword as you can’t do stretch marks and that rules most of me out!!!
I hate to say it but I am so glad you can explain the leg thing as you do. Lead legs with jelly inside is me all over,both after sitting a long time,standing for too long and walking too far. The only thing is it varies how far/how long too long is so I can never judge what I will be able to do.
I feel a right numpty walking along thinking every step and silently telling my legs to stop being stupid and just walk properly. I think I’m doing ok and pensioners with their shopping trolleys zoom past.
Watch what you are up to back at work
Pip
ps Hazel if you start a new thread about yourself and your worries you wont get lost amongst Lous replies and your own will surely follow.
Pip
Hi everyone ,
You are all right if we dont make fun of what is happening to us we would cry !!!
I go to work and have been lucky enough not to be off since the beginning of the year ( dare u say this without fear of something happening) however sometimes i feel okay then wham along comes the dreaded leg thing , when people ask am i okay i just say my legs dont belong to me because i often feel buzzing , numb, weak , heavy OMG think every feeling possible hits , but you know what we all have to get on with it and smile . I will say thank god for this site and people knowing how i really feel cos when people cant see i think they think we are at it …
Anyway hope you all feeling good and ready fro Xmas oooops i only just started got all that shop thing to do LOL
Mandy x
Thanks Lou Who would have thought that that question of all questions “how are you?” Would be the demon of our days haha! How rude of that doctor to use your weight as the reason!!! I had the strange goose bump feeling on my left side of my face about a week ago but it wasn’t the whole side just a section of it, strange. Keep smiling yes, if we don’t we’ll only cry… Mrs C x
hehe I thought I was doing so well this morning on my wobble to work ha! kidding meself again it seems lol even the lollipop lady commented today flipping heck lol my legs have gone thro periods of not being attached toe since I can remember "/ I can feel them if I touch them but I can’t feel me feet hitting the floor as I walk the neuro I’m not sure if he knows anything about MS I’m reluctant to even ask when I go for my appointment ( new yrs eve!!!) it gonna be bad enough that I’m demanding yes demanding! that I had be an open MRI again and I def do not want another LP I’m sure those factors will go against me from the off lol Enjoy the rest of ur day ladies I’m pooped now from work n got most horrendous “hug” down my right side so I’m off. for a lay down Catch up with u later Lou x
I have my next MRI on New Year’s Eve haha joy for us a!!! I asked to be sedated for my first one last week as i was so nervous & I was completely wiped out after so I either try & brave it or ruin nye for my hubby by being a complete zombie! Shame it’s not fancy dress i would have fit in so well hahaha! I hope you’re not feeling too bad with the hug & you’re wobbliness Take care x