Hi Ben & welcome to our little gang…
There are a couple of people on this ppms board that are either using LDN or have tried it. I have not but some people swear it helps. Hopefully they’ll see your post and respond.
There’s also people with RRMS who use it, so posting on the EL board will get a bigger response (we are a much smaller group… as you probably know, only around 10% of MSers have ppms).
Most GP’s and neuro’s will not prescribe it as it hasn’t been recommended by NICE for use with MS. Also I think that the patent has run out on it (it was developed years ago) so there’s no money to be made out of research. That’s what I’ve heard but not sure how true it is.
I believe the MSS (this site) has done some research on it without any dramatic results. Look around on this site under ‘research’.
Most people who use it buy it from the ‘LDN Research Trust’. They have a website & you can buy it from them. Check it out.
Good luck with it. No harm in trying as from what I’ve heard it’s easy to come off of.
Nice to see you on here. Come back soon,