Hi there, me again!
During the loading doses of Kesimpta did anyone experience worsening symptoms? I’m having a lot more neurological pain and I’ve dropped more things in last 2 weeks than last 2 years!
Any experiences of loading doses gratefully received!
Thanks
Yes! I have completed the 3 loading doses and just a few days ago the 4th jab - and everything is quite flare-y, especially my spasticity and bladder issues. I am burning myself loads more whilst cooking, tripping over more and fatigue is much more pronounced. Also noticed a lot of hair in plughole when I washed my hair yesterday!
Hi @Minnie_Mouse1 I’m sorry to hear you’re experiencing issues too. I hadn’t thought hair loss was a thing on this drug as I had very specific concerns around this and was told it’s not an issue on this drug, which in some ways doesn’t make sense if it’s effectively a low dose chemo drug.
I’m defo tripping up which I never did before and I’m burning myself a lot more. In general I’m just a lot more clumsy and I’m already super clumsy being a lefty haha!
I guess we hope it gets better….?
Im on kesimpta for 2year now seems ok but my legs still get fatigue when doing anything physical need to have sit down for about 30 mins.