Hi Whammel,
You always seem to have helpful links for people!
I cant believe that you remembered I was taking LDN!
When I was first diagnosed with lung cancer I had to have three broncoscopies, the first was to determine the type of cancer but they caused a massive bleed, the second one was to take a sample of the tumour that would normally have been taken on the first one but they didn’t take sufficient hence the third one! They are so horrible and as the sedation is morphine I stopped my LDN and was advised to stop it during the treatment. I was still able to take biotin and after a few months of no LDN I realised that my bladder was fine…LDN helped my bladder and parethesia but what I hadn’t realised was that biotin had taken over controlling my bladder and my skin problems so I stopped the LDN totally and I was fine. No point in spending on medication if I don’t have too! I’m only sorry that Biotin doesn’t seem to have been such a help to you.
I don’t do Facebook but I will get my husband to check it out, we have the Kaytruda website so maybe they can help me find someone else with MS that is taking it. My fear is simply that it’s is making my MS worse and nobody seems to be able to tell me if this is permanent or not.
Once again, many thanks for your help, it’s much appreciated. I hope things aren’t too bad for you at the moment?
Take Care, my very best wishes,
Nina