i posted a bit back with 'my experience of symptoms' and im writing again because today im feeling pretty down and wanna use this space to just get some of this off my chest knowing alot of you will understand in a way my friends and family wont.
I havent been diagnosed MS. I started with symptoms 24th november with tingley/numb/pins n needles/shakey vibrating feeling to my left side of body (not face or neck) meaning i wasnt able to walk. i was spaced out and having panic attacks too. My left side of body was hyper sensitive so something small like something lightly touching my left leg would send me into a shaking fit and then a panic attack. I went to hospital where i had tests and it came back that a patch of inflamation was found at the top of my spine, that my anti bodys had attacked and damaged my nerves. I was put on a steriod drip and sent home.
Since being home my symptoms are i still have a tingley left hand, a tingley left leg and my rib cage/chest on the left side feels numb. I can walk normally for ten minutes but after that i struggle.
My symptoms are now effecting my right leg almost as much as my left. constant pins and needles/tingley feeling in my right foot and when i walk both legs are very tingley and half numb. It spreads to inbetween my legs then up my stomach and chest.
I am just left feeling so confussed. Am I still under attack from my anti bodies? Is this a new attack on my right side? It has been constant tingleing since november but since being home from hospital it has spread to my right side.
Should i go to my doctor? Is there any help for what im feeling? I have no idea what to do to help myself, im reluctant to ring my doctor as I know she knows nothing about this, but I feel I want to see a neurologist. my MRI scan only showed head and neck, could it be i have other damage futher down on my spine?
Each day I have woke up and felt so sad and dissapointed to feel that my left arm is still numb and all of my body apart from my neck, head and right arm is tingleing/vibrating still. When i move my head a certain way i get a weird electric shock type tingle thing from the bottom of my spine to the top. Its driving me crazy! As a single parent without a car i walked everywhere and was so independant and quite busy. Now all I do is walk my son to school and back and lie in bed hoping it will go away.
Is it time i maybe accept it isn't going away or is there still a chance it might?
Im emotional today after not sleeping well for the last couple of weeks and really wanted to just write here what i was thinking. I know that nobody can really give me the answers or the cure but writting here will help at the moment.
p.s. the first lumberpuncture i had sent shooting pain and a twichy feeling down my left leg and felt really awfull, i went real hot and almost passed out. the second one didnt feel so bad. could it be my nerves were damaged from the lumberpuncture the first time and this is what im feeling now? Alot of what i feel seems to be centred around the bottom of my spine.
hufffffffff i feel abit better now after all that....................................thanks! anything you might have, advice, experiences, is welcome. Todays one of those rubbish days for me