Just diagnosed - feels like they may have it wrong

[Holly121]

Hi Folks,

Just wondering if anyone out there has recently been diagnosed with MS but feels like the world has gone mad?

I’m a very active person who keeps myself relatively fit in January this year I had some numbness tingling pain on my left side. I then went to GP got an MRI and was told I had lesions in my brain and in my spine that were cuasing me these symptoms but is was CIS.

From then on I’ve felt really good having improved my fitness over the year. I had a repeat MRI scan and then was told yesterday (29.11) that I have MS even though I’m feeling healthier than I have in a long time.

I’m (removed by moderator) scarred, literally (removed by moderator) myself that everything I had in my head is now gone, children, running around like a headless chicken with them and then being a badass granny on a motorbike one day.

Is it guaranteed you loose you mind and mobility its just that doctors don’t know how long this will take?

Is it normal for you to get this diagnosis and then be left without a treatment plan because you “might be pregnant”.

Its totally (removed by moderator) can you have / live with MS and not feel it all really?

Mind blown, anyone else feel like that?

[alison100]

An MS dx is a biggie: it’s a life-changing diagnosis and it doesn’t feel like anything else. It is completely normal to feel pretty devastated, whether your MS has arrived with a real bang or has sneaked in relatively quietly, as it has in your case. And it is hard to get one’s head around either way.

And yes, it tends to happen in young adulthood when a person is just establishing him or herself in the world and is full of hopes and dreams that can feel as if they have come to a grinding halt. It is more likely that they will just need to be renegotiated a bit, adn normal for you might not quite be the normal you imagined. But most of us find that we are more resilient than we think and it turns out that we manage to deal with whatever comes along. You will not always feel as bad as you do now, that I can assure you with confidence. Where you are now is no fun at all, as I well remember. We are tough creatures, and, sooner than you think, your usual feelings and habits will reassert themselves and life will begin to feel a little more managable. You just need to hang on and get through the first, painful shock.