hi my name is xander and i have just been told i have ms
about a month age i went to addenbrookes for a day of testing i had a lumber punch and mri scan of my spine and brain and i gave them loads of my blood too lol
today i had a phone call from my consoltant telling me i have ms
i really dont know much about it as i have managed to fight the temptation to look it up on the internet when the posabilaty was rased a few months ago
so i thought id say hi and worn every one i may be asking some dumb questions over the next few weeks as i come to terms with what is going on
thanks xan
ps sorry about my spelling im very disexic and cant find a spell check
Morning xan x nice to ‘meet’ you! sorry to hear about your diagnosis but you are in the right place here for advice and support x I’m not diagnosed but there are lots of lovely people on here who are and will take the time to help you through this xxjenxxx
PS There are no Spelling Police on here!!! Much more important things to worry about than that!! xxxxxxx
I too think it was bad for you to me told over the phone, do you have a follow up appointment with Nuero? If not think u need one to find out what happens from here, also ask about MS nurse. Might also be helpful to join your local MS society branch, hive of useful information and support. I am too still waiting for my Dx, do you mind me asking how long yours took? This is a great place to ask questions and find help, a friendly bunch. Welcome
i had been chasing up as it had been over a month since the tests(he had been abrord working), we got on well when i met him in person so i was just pleased not to have to wait another few weeks for an appointment
ive been having errr issues for years but most were blamed on a back problem i had.
things got worse and i started going to see the same gp insted of who was free as the time as i had been doing she must have twigged and sent me to see the nuero consoltant from seeing hime its been around 3 months a long 3 months i has felt like too lol
Don’t worry about the spelling and don’t worry about asking what you might think are dumb questions - sure as fate that someone’s dying to know the answer, but doesn’t want to ask it!
Hi Xan Just wanted to welcome you and tell you that we are all here to listen if you want to chat or even rant and rave. We all support each other on here and understand how each other feel. Please ask anything you like as someone on here will be able to help, I’m sure. Teresa xx
If you stick to the ms society and ms trust for information you will find all you need to know.
Dont forget though that they have to cover every possibility in their booklets and you will have your own very own unique ms and will never have everything they say.
Then when you come on here you will talk to people who actually live with the symptoms everyday and there is a wealth of knowledge on how to cope,and things to ask for.
Gps know very little about ms so you tend to end up telling thwm what to do and prescribe.
Many people on here have visual problems and as you did it helps to have gaps in the lines of writing so it doesnt merge into one. Is there anything we can do to help you read our answers?
