So what does everyone do to make a living? Currently i drive a bus, when im sitting its ok, i dont get dizzy, i have the pins amd needles so dealing with money is hard, but what does everyone else do, if i have to stop driving im stuck! I cant stand long. Cant deal with large amoubt of money (max a fiver a day on my bus route) i cant use computers too well as i cant type well anymore, takes forever to do what im doing. So now im curious! for me all shop work is out of the question!
Work…that’s a toughy!!
I have said I will go back on a phased return to work…I work for NHS my job is physically and mentally challenging so I am bricking it to be honest!
This doesn’t help you though!
Is there owt you could do on a self employed basis working from home or have you tried the benefits route/options?
It’s daunting to know what to do so I feel for you I really do!
Michelle 
Worst thing is i love my job, as long as my eyesight stays ok i shoukd be ok, its exhausting though, thays my biggest issue, and im going to keep doing it as long as i can! Worst thing is, i got this job, then gpt diagnosed… life is not fair! i do not really want to go down the benifits route, but if worst comes to worst, then i would
I know keeping working is your independence… plus you are meeting people too.
In your job I bet fatigue is hard to combat.
I usually go to my car and have a rest at lunch times or if am officed based lock myself in the tiny office only trouble is it is right next to Staff Room so have to dodge people so they don’t think am weird or anti-social!
Do work know about your diagnosis? M x
Not yet know, im still waiting on dvla, they have wrote back saying they are going to contact my nurse, shes okayed me to drive, once i get all that sorted i will tell them, one step at a time, i want them to have peace of mind with the dvla too!
Hi ssamm,
Well I work in a shop, but I’ve been signed off since Halloween last year due to relapse, but had been on “light duties” for about 12 months or so before then and also signed off in June 2013 for 8 weeks due to relapse.
At the moment work are stressing me out a bit, cos they obviously want me to return or leave but the law won’t let them get rid of me just yet!! Don’t really know what todo really…
BeckyX
I wonder the same typing is weird with my fingers I can just. I was doing a course in graphic design and web design where I can’t remember what I’m learning so can’t see the course getting finished. My degrees in corporate communication so not really sure what I’ll be able to do. Though I often think working would be easier than the kids they tire me something chronic. If it’s been a busy day I’m knackered. I slept all evening yesterday x
I work in the public sector in an office based job. Although using a computer is hard adaptations can be made. Driving can be an issue to get to work. I have my licence reviewed every 3 years and am waiting to hear back on my latest application. I changed jobs after dx as my old one was too difficult. My ideal job… traffic warden in my wheelchair 
Good luck Neil
I am a Manager for a Pension Admin Team. So mostly desk/office based.
The brain fog causes me issues and I find i’m not able to make decisions confidently anymore.
I also do a lot of (or used to) classroom based training (presentations). can’t do these anymore as i cant get up and down to write things on flip charts etc, struggle to use the keyboard some days so my power point presentaions sometimes get messed up when I press the wrong keys etc. Also with the slurred speech that comes on and me wobbling all over the place I appear drunk to my trainees. i got reported for being drunk at work once because they didn’t know what I have been suffering from. i was mortified that r anyone, whether they know me or not would think that of me, so I have had to delegate tha part of mu job to someone else. It makes me sad as it is one of the parts of my job that I really love.
I also do a lot of interviewing, but again this can be a problem due to speech and tremors whe i’m trying to take notes.
The main issue at work is th extreme tiredness and also the balance issues. I am still working full time but fear I may have to reduce my hours soon, or worst case scenario give up my job which would be heartbreaking.
Luckily I have very supportive employers but there is only so much the an o to support me. I’m hoping that if I can get some treatment soon, for whaever it is I have, things will improve. Fingers crossed!
Hi, i have been formally dx after almost a year of being in limbo. My question today is, what do i do regarding driving my car? Do i need to inform my insurer and the DVLA?? I drive okay, just have difficulty getting in and out of the car coz of pain and stiffness in my legs. Advice would be much appreciated. I don’t want to lose my car 
You have to inform the dvla, they ill contact your nurse doctor, im still waiting for what they say, like you im fine to drive, it shouldnt be a problem, for me if they say no which is very unlikely, my life will be turned upside down! its interesting reading about other peoples experiances regarding work, and the similar situations were all in. Longest i was out of work, which was in sainaburys, was 4 months, couldnt cope and stress levals at max!
hiya
i am too ill to work however this post made me jealous! i always wanted to drive a bus! got the application forms then started having probs however its buses that enable me to get out house! only local so far-5 to 20 miles-but i am gradually able to get further. thankfully the buses here have carrier bags hanging around for rubbish and i will grab one to puke in if required!
long may ur career last!
ellie
I work part time as a mental health worker, about a third of our staff team is disabled, yet some get treated far better than others. They recently changed a decent sickness procedure to being completely punative, so I rushed back to work after 8 weeks and have had nothing but problems since but can’t take any more leave for sickness for 6 months or they will go down the capability route.
Despite a set procedure certain favourites of the boss get away with murder whilst the rest of us are treated quite badly.
I work for a supermarket in the cash office. All was ok until about a month ago when they took in new self scan tills. If you think life is bad as a customer try filling them. You have to crouch down to fill them, no mean feat when you have to walk with a stick. Thankfully I have excellent colleagues and we have adapted ways of working so it is not quite as hard on me. Life certainly is a challenge nowadays.
I work in an office based job for a ftse 100 company, I can manage to use computers so I’m ok for now. My colleagues have been excellent to me and everyone helps or just works around me. Cheryl:-)
I work in an office and my colleagues look after me and make sure I don’t overdo things. I’m still waiting for DVLA to make decision. Most people get a 3 year license as long as their eyes are ok. I believe they take away the van and motorbike part of the license though
No motorbike Yes on Van say a Sprinter which is upto 3.5 ton, No on a Minibus also
Oh no am I going to lose my motorbike license then…didn’t realise, I haven’t got a bike just would like the option…
I don’t work outside of the home, haven’t since I have had kids. I have a SN child who has deserved my full attention and luckily I have a very supportive husband who is a bit old fashioned and happy to be the only bread winner. I started a home study course in September in Pyschology with a plan to go back to college this year. I thought it is time to do something for me and enjoy working.
Then the MS hit… I haven’t been able to do the course, somedays I can’t write, sometimes I can’t drive, I can’t retain anything and can’t concentrate for long periods. My memory is shocking. So angry about that part of it more than anything.
Vicki
I’ve got Category AM (2 wheeled vehicle with max speed 28mph), A (with restriction: tricycle), B and B1 (cars and car-sized vans), BE (car with trailer, combined weight over 3,500kg), and fklnpq (which I think are pretty standard). I’ve lost some categories - transit-size vans and minibuses with up to 16 seats have gone, but I haven’t driven a van for years and I never used the minibus entitlement.
To answer the question in the first post, I’m a systems engineer working for an aircraft manufacturer. I’m on a team that produces the test requirements for our test team to work to. When they’ve done the testing and written their reports, we produce the documentation that says our subsystem is fit for purpose and safe for flight with any applicable restrictions or limitations identified as a result of the testing. This enables the aircraft build team to fit our subsystem to the aircraft and the pilot to go fly it.