So my neurologist is putting my relapses down to a treatment failure and was strongly advisted to try tysabri and didn’t advise anything else, I’ve read about it and a little apprehensive, I did my JC test a couple of days ago now any idea how long until ill get the results back & start on the treatment
My results took 4 weeks and started tysabri 2 weeks after that, best thing ever. There is a great group on Facebook. Gray
I think they take quite a while, I had my blood taken for the test before I started Tysabri and got the results on my 3rd infusion - so that was about 12 weeks. This was 2.5 years ago.
Is the group called “the face of ms” or along those lines? I’m following a group on facebook called that, I spoke to someone who was having his tysabri infusion while I was there and his relapses was similar to mine affecting the same, my legs and found new legions on my mri scan. I’m kinda excited to get on it as he said a couple of infusions into his treatment and his fatigue is now reduced etc, he’s also got jc virus but the risk of not having the tysabri is greater than him trying different desease modifying treatment so he’s not bothered about getting PML.
There is a facebook page UK Tysabri users (Natalizumab) which is very pro -Tysabri but gives you an insight into how others are doing and who else is in your area having monthly infusions… Good luck. Peter.
As peter as said above great group, Hope it goes well for you Gray
My JC virus test took 3 weeks to come back , it was negative but still decided against Tysabri in the end . Have been hearing such a lot of positive feedback about it lately . Hope it goes well for you . X