I had my first Tysabri infusion last week, all went well and I had no effects apart from feeling very tired for a few days.
When I had the blood test for the JC virus I confirmed that I had decided to go ahead with the infusions whether my test came back positive or not. Funding had already been approved so I was slotted in to the next available slot for my transfusion.
I opened the post today and had the letter confirming my results, I am positive for the JC virus. It hasn’t changed my decision, I was always aware of the risks and I still believe the potential benefits to me are worth giving it a go, but it still sucks. It feels like I’ve been hit with nothing but bad luck since July, I was hoping for a glimmer of good luck but I guess it wasn’t meant to be.
I’m ok, I will still continue the treatment, those around me know the signs to look for and we all know the figures involved in terms of risks, but reading those results really got to me and I couldn’t help but cry.
Thanks for reading, now I’ve vented I can start to feel better about it. It sucks but I can pick myself up, focus on the positives and carry on taking each day as it comes.