I was reading something the other day (not specifically about MS), that said that in surveys, most people who didn’t have a condition rated the detrimental effects more severe than those who actually had it! I’m not quite sure what the lesson is there - except, perhaps, that most people cope better than they think they would, or else that those who are ill learn to focus on the positives.
In similar vein, somebody asked me about my illness, the other day - it’s not that it’s visible - just cropped up in a discussion about hospitals. He wondered what I’d “got”. When I told him it was MS, he said: “Oh dear, that is especially unlucky!”
I thought (but refrained from saying): “Well, not really, no.” Thirty years ago, a friend was murdered, at 17, by an escaped lunatic, because she refused to give him a kiss. Now that was especially unlucky: she didn’t get her life at all - ended at the threshold. A life marred by MS is surely still better than that?
And then I watched my dad die of an agonising and incurable disease, all because, on leaving school, he’d worked for a few months in an environment where he was exposed to asbestos. It wasn’t even his ultimate career - just a casual job he took, while he was looking for something better. Over 50 years later, he paid the price. OK, I’m not denying he at least got a chance at life. He made it to retirement age, and a little beyond. But is it right that his fate was sealed by a temporary job he did in his teens, and after that, it was a ticking time-bomb? I would say that was especially unlucky - more so than MS. Plus, once it was diagnosed, he had to live with knowing he would die of it. I can’t imagine what that’s like! I probably won’t die of my disease, and even if I did, it wouldn’t be due to some job I did as a teenager. There are different degrees of “unlucky”.