Hi,
Saw Dr Nicholas this morning and he confirmed my diagnosis of RRMS
Although i was pretty much expecting it, to be told hit me like a ton of bricks. I have cried so much today, im angry/sad/frightened/disappointed/frustrated that my body has done this to me.
Dr Nic was wonderful, told me the treatments avaiable and to go and research which 1 i want, Avonex, Rebif, Copaxone. another i cant read his writing & Tysabri, can anyone share their expiences of these.
Thanks
Tracy xx
Tracy,
I am so sorry about your diagnosis.
The website ‘msdecisions’ will tell you all about the different DMD’s. Have a good read about them and if you still have questions - ask on here.
Take it easy - it is normal to have mixed emotions at diagnosis. One day at a time.
Best wishes
Teresa.x
Really sorry about your news, but at least now you can get on with learning to deal with it and getting the right support to do that.
DMDs are a great start - a chance to start fighting back! As Teresa says, the msdecisions website is the place to learn all about them. I would guess that the missing word is betaferon or extavia btw.
Take it one day at a time. It’s hard in the beginning - but it does get easier.
Karen x
Sorry for your diagnosis xx Hugs Sam x
Hello Tracy, So sorry to hear of your dx, take each day as a new day and once you’ve finished crying and all the other horrible feelings you’re going through, look to the future and live as there is life with ms. Sending ((((HUGS))))
Janet
x
So sorry for your dx Tracy - it is a big shock when you first hear. It sounds as if you have a really good neuro which makes all the difference. Take things on a day-to-day basis atm. It is better not to over think things and look too far ahead. I hope you have good support at home which will really help. Thinking of you, Teresa xx
Sorry from me too.
As the others have said get on the msdecisions website and learn about them all.It is a very personal decision which you want to use, and the site will tell you everything you need to know and then there is a tool at the back to work through so in your own mind you can work out your preferance.
It really does help speed up the process if you have an idea of which you want/or a least dont want before you see the ms nurse.
As to coping with the dx as the others say its a day at a time. It is a shock even when you expect it because I’m sure at the back of our minds there is a little voice saying nah its all a big mistake I’m fine.
Be good to yourself while you get used to the idea and we are always here.
Pip
Sorry to hear about your dx. Take care X
I’m sorry to hear of your diagnosis Tracy. I’m not diagnosed so can’t add much on the med fronts but at least you can start to move forward and get the help you need.
Take things a day at a time. Even if you’ve suspected MS being told you finally have it makes it all the more real. Take some time to come to terms with it.
Thing of you
Reemz
X
Thankyou all for your kind words and advice, Means alot to me
We are off to Sussex for the weekend this morning to visit my in-laws (amazing food cooked for me!) My partner is doing a marathon tomorrow, wish i could run, can just about walk!!
My ms nurse called me, I have been invited to ‘an MS info day’ & my Neurologist is giving a speech, so my partner and I along with my sister (dx 7 yrs ago with RRMS) are going to go, feel it woulod help us
Tracy xxx