It’s so tough reading what I cannot have

PPMS’er here. Reading daily of potentially effective treatments I cannot either afford privately or not given on NHS. It’s impossibly tough to see the benefits others are getting.
Feels like I’ve not been in the right place at the right time and won the lottery.
Subjective reasons, confusing CCG rhetoric et al.
Another day of reading of how much better my life could be

Hi chick.
Yes I do know how you feel, as it is the same for me.
Unfortunately it took 22 years to get my PPMS diagnosis, so there is nothing to slow or help me much…apart from nerve pain drugs…which I am grateful for!
It is what it is!
Love Boods xx