Not even diagnosed but should find out soon.
I just think my age 36 is against me and also my luck. I’ve always had to bear the brunt of things in our family. I’ve lost three family members in 7 years now this.
No relapses I know of just on and off symptoms for 6 weeks. Lots of little symptoms lasting a few hours to minutes
Pins and needles
Lump in my throat trouble swallowing
Funny bone feeling in left elbow
Right ear went muffled
Cramp left leg
Cramp right leg
Face pain in cheek
Pin prick sensations
The list goes on and on.
I have a bleeding polyp they won’t remove. Not MS related
All come and go except dizziness. No major relapse like losing vision so can’t be RRMS
I feel like it’s bad. So much symptoms in so little time. My body has betrayed me and I betrayed it after a lot of stress
I’ve given up hope it was something minor. Or even RRMS. Thinking I’d get some remission some respite or whatever.
There’s no good outlook with ppms it’s oh you’re on your own. I’ve read terrible end of life life. I remember the news on Andrew Colgan who went to dignitas as his progression was so severe in 9, years aged 42.
We don’t have any good DMT to give you. Moderate effective Ocrevus.
I’m constantly in a state of emotions.
I’ve tried to be so optimistic. I’ve told my GP I’m not well even reception know who I am as they ask me if I’m OK before I give them my name.
I’m not, I’m 36 I’ve a family. A job that we rely on and if something happens to me that’s it. No way to pay off mortgage, I’ve only really been working 8 years so bugger all money in the pot.
I’m working from home but can’t face going back.
All too much for me. Even with counselling and reaching out.
So sorry this isn’t positive posting. I’m venting.