Hi everyone, hope you are as well as can be expected…
I have been having 'MS flare ups; since going on to Betaferon 2 years ago after having one relapse. A very experienced MS nurse told me it is to be expected as I am now Secondary Progressive; or somewhere in between. My Neuro recently advised me to self Catherise twice a day as he said some of these flare ups are probably caused by urine infections. Found it tricky at first but now manage ok with it.
Since the beginning of December I have been having problems with constipation and bowel incontinence; also my right side was weak particularly my hand and I dropped several things over Christmas.
I have felt pretty good for the last 2 days and realise that I must have had some sort of relapse. (Still working on the bowel issues and exercising right hand).
I can still walk but not very far these days and use a scooter to get me around town.
Is this what I should expect? Flare ups every few months followed by maybe a week of feeling quite good.
Advice from other Secondary Progressives would be appreciated.