Is this a relapse ???

Everyday living
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Hey guys. I have been secondary progressive for a few years now & things have just bumbled along getting a little bit worse over time … Nothing unexpected . But I feel like I’m having a relapse now ??? I have been going through a very stressful , emotional time so I’m assuming that’s the cause but it feels like the old days. So tired , dragging my self around pains everywhere , I’ve not left the house in over a week. So could this be a relapse ? I eat really healthy , take supplements , am sleeping / resting as much as I can, got a great support network of family & friends helping me out … I don’t know what else I can do to shake this off. Any ideas & suggestions welcome, Louise x

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hi louise

i’ve read that sp can still get relapses.

check that you don’t have an infection.

then contact your ms nurse because there may be something that she/he can offer.

take care

carole x

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Hi Carole , thanks for replying . I don’t think I have. I’ve just finished a course of antibiotics ( I’m always getting bladder infections) but have just gone through a major relationship break up. So lots of emotional upheaval & knowing how badly I seem to react to stress ,if relapses still occur in secondary progressive then maybe it is !! Will contact ms nurse tomorrow & seek some advice. Cheers for that honey :slight_smile: x

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Hi Louise

I have had a stressful time lately as well. We just moved house on Friday. I haven’t been feeling great all weekend and my left foot keeps tripping me up. ( worse than usual). Just now I am putting it down to the stress and tiredness running up to the move.

By the way I am SPMS too.

hope you are feeling better soon.

Mags xx

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Hi

You can still have relapses with secondary progressive ms, i am SPMS and still have really nasty relapses,

mine have just got more severe and more often,i used to relapse every 3 to 4 years, when i was RRMS now i have a nasty one every 12 month to 2 years,and it takes me longer to partially recover from them too

i dont know why people think you stop having relapses when you go into SPMS i wish it were true though i would love to stop having them,

i think the new label for secondary progressive ms with relapses is progressive relapsing ms ,i think it just depends on what label certain neuros use. i have never taken any notice of them to be honest,all i know is my ms is progressing and i still have relapses,and i have had it 23 years,and it does what the heck it wants.when it wants.

J x

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Hi, I have SPMS & now don’t get relapses as such, just a gradual worsening of the symptoms I already have. As you can see from the other replies, some have relapses with SPMS & some don’t, everyone’s different. My first thought was that maybe you had an infection, might be worth checking again? Sounds as if you’re having a really shi*ty time at the moment, so you could be having a relapse, stress certainly doesn’t help. Take care of yourself & check in with your nurse on Monday, hopefully you’ll get some help.

Good luck

Rosina x

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…same here Rosina, it’s in a strange way ‘comforting’ to know that there are other MSers out there who do not really have relapses but a gradual worsening of symptoms, just as seems to be the case with me.

By the way Louise, you have been SP for a few years now…, were you also diagnosed as SP or?..

I was diagnosed (finally as far as I am concerned) at the age of 40. RRMS to start with (although no clear relapses as such), then ‘SP’ a few years later, after persuading the neurologist that I was not aware of ‘attacks’ but experienced a slow but clear regression health wise.

Take care both of you!

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Hi All,

Do you not get the feeling that the neurologists don’t really know when it’s RRMS or SPMS and just rely on retrospectively giving it a label. I’ve noticed that sometimes I get labelled at having SPMS and other times progressive MS. I’ve never felt I had relapses and it always felt things just got steadily worse even though the neuro originally called it RRMS. I think your own guess is as good as your neurologists.

Diane X

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Ah thanks to all of you for replying. Well I have got another flipping infection ( confirmed today ) . And agree the whole labelling thing … They don’t really know do they ??? So I’ve concluded I’m just gonna get on with it, try & be happy & keep looking after myself as best as I can, thank you for the support guys, it really helps. All the best to all of you, LouLou Xx

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