I was diagnosed a few weeks ago. A brief background is that last year I had sensory symptoms, I had 3 separate ‘episodes’ of numbness in my legs (alternating each time), I only had 1 noticable lesion, which is on my spine, near my neck.
I saw my lovely professor (all of the neuro team I have seen so far have been fab - bar one but you can’t have it all can you?!) a few weeks ago for the first time and he has diagnosed me with ‘mild MS’, yes, yes, I know but that is what he said, he explained that because I’ve only had sensory symptoms and they have cleared up so far, that he just wanted me to up my Vitamin D intake for now but that I will be seen again in a few months and they will keep an eye on me.
So, on Sunday I spent the day out with my kids, I was on my feet for the whole day. I got home and was shattered, then I got a little tingling in my left ankle, it didn’t seem to get any worse by yesterday morning, then during the day yesterday, on and off, I had tingling in my right hip (the ankle is still tingling!) now today I have had tingling on my left side of my head, just above my ear in my hair and it feels like it may be moving into my face too now. I’m still feeling tired (but not fatigued) and I can feel the anxiety (I could feel it this morning when I woke up). The question really is, is the anxiety because I’m worrying that this might be a relapse or could it be that this is the start of a relapse and the anxiety is just part of that (I had anxiety with my previous episodes)
At present, I am not in touch with my MS Nurses - I was told they would contact me but I’ve not had anything as yet, otherwise, I’d call them and ask… my thinking at the moment is wait and see if it continues or gets any worse but as I am newly diagnosed, I don’t know if I should be calling my Professors secretary or not!!!
Is it possible that I’ve just worn myself out by being on my feet all day on Sunday and my body just hasn’t recovered yet? I had to have a nap this afternoon and I am heading off to bed very soon…
If you’ve read this far, thank you and if you have any advice of any sort, that would be great!!