Hello.
I feel silly posting here because I don’t have a diagnosis, but I have been getting symptoms for a while and I finally found a GP who listened and understood my worries so I’m waiting for an MRI scan which is in 2 weeks. The wait is killing me (as well as these awful symptoms).
Whatever it is, I’m having a ‘flare up’ currently. Ive been absolutely exhausted the last few days and just wanting to sleep constantly day and night. My whole body aches and I can hardly pick up the kettle without feeling like I might drop it.
I’ve had really annoying floaters and blurriness in my right eye for a few months which isn’t going away. and also brain fog. My memory was always very good (I have Autism and a good memory was always my thing) but I am forgetting even important things these days.
I get tingling in my hand and foot often, which doesn’t go away for days sometimes.
Ive been to see the GP countless times about these symptoms for the past 2+ years. The one who referred me for an MRI said he wasn’t sure if he thinks it’s MS hence the MRI referral, and he thinks it’s Fibromyalgia but were just waiting to see now. He didn’t bother referring me to a neurologist because the wait time is currently 70 weeks here.
I’m 34 years old, ive got 4 kids who all have autism/ADHD. I just want these symptoms to go away now, it’s really hard to just do normal everyday things when I’m feeling like this. I know it’ll pass and next week I’ll be doubting myself again thinking I’m going mad because I’ll feel absolutely fine, it’s always the way!
Thank you for listening to my rambling. I haven’t told anyone that I think I’ve got MS because the idea of it doesn’t feel real. Until recently I thought MS was something old people got, my head of year at secondary school had it and she was in a wheelchair by the end of school and it was a sad sight to be seen. So I had a tiny bit of knowledge but this site has helped me understand a lot more.