is it just me?

Everyday living
1

is it just me or do some people think sometimes that because alot of ms symptoms arent visual then other people might think your faking it? ever since the assessments and form filling in and having to constantly prove your disabled and justify why you need to be on esa that you start to think well should i be allowed on esa if no one can see whats wrong till the crutch comes out, have i really got something wrong, having mental health probs to the hilt dont help either but…at times i even start thinking that as other people dont believe me and think im lying then theres nothing wrong with me and they are right, then i look at all the confirmation letters for everything thats wrong with me and i think how do i try not to believe other people when i got the letters, i feel like starting to pin the letters to my coat when i go out for people to read and then they will know im not a liar and faking it, i dont know if this makes sense to anyone, but im starting to get to the point that too many people in authority like atos and other people say im lying and im a faker and making me feel like that aswell, that im actually starting to believe it myself altho i have all the confirmation letters for proof, how do i get out of this way of thinking?

2

Hi there and welcome,

The way I coped with it was that I knew for certain there was something wrong with me and if others didn’t believe me, well tough on them. Once you are dx and have letters to prove it people then believe, amazing! But the form filling in is another story, just tell the truth and they have to believe you especially as you have confirmation in your letters.Try not to get annoyed as it will only make you feel worse. Take care.

Janet

x

3

thanks janet, wen people tell you enough times something you tend to start to believe it altho its not true, im starting to give up, i used to tell people to stuff it if they dont believe me but now im even doubting myself, its cruel how other people can do this and make you do this to yourself

4

Hi again,

Don’t doubt yourself as you know what your body is doing and from the outside people can’t see it. Just try to brush off their remarks and put it down to their ignorance of the dx. Unless you have it no one can truly understand the pain or all the other things that go with it. You take care and believe in yourself.

Janet

x