Hello, my name is Sorabh Arora and I have PPMS for previous 4 years or so.
Please suggest options to re-energise myself.
Hi Sorabh,
I’m sorry to read about your MS problems. I had similar experiences.
I have made several posts on this forum in this respect. I strongly suggest that you stop consuming cow’s milk and associated products such as cheese. Milk is difficult for humans to digest. I felt Much better once I stopped having milk.
JC
I wish I knew the answer! I have got SPMS and often feel drained. I think I’ve got used to knowing that if I’m going need to do something then I need to store up some energy in advance, and that once it’s done I’m not going to be able to do much for a couple of days. Things that give me energy include a change of scenery, a bit of exercise (though what I call exercise would get me laughed out of a gym!), Coffee, A cat nap, turning the heating down a bit, a quick phone call to a friend. There’s nothing to guarantee that they’ll work for me, and there’s no consistency to the outcomes either. If you do find the magic answer, make sure you tell us all😉
Swimming.
The water supports your weight and cushions your movements. Only means to a cardio workout for me now as walking or standing hard for any length of time.
Sublingual B12
Hi there. I don’t have PPMS but have had RRMS for 18 years. Like most people with MS I do get fatigued ( times when it’s a struggle to do anything much) and can also run out of energy when I’m active. ‘Active’ is a relative term ! I’ve just been tidying up and hoovering and now need a bit of a rest.
Are you happy to share with us when you run out of energy? Is it all the time?
There is a great deal of advice on diet and MS - eating a Mediterranean style diet etc. Have a look at this MS Society Website and I also refer to the website of ‘Overcoming MS’ which has a lot of info on diets and exercise.
Many people seem to find that Magnesium supplements help ( I take them from time to time plus B12 and also Vitamin C now and then )
I don’t drink or eat dairy products ( but do still get tired).
Have a look and read as much as you can about MS Fatigue and general tiredness and also try to do what exercise you can - as @GCCK says, swimming is a good option. If you have an MS Nurse then have a chat with her/ him
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Hi Sorabh, Oh gosh this is something I really suffer with. I’m SPMS, went straight in at this stage, was always fit, into exercise one way or another, it was a big part of my life…until.
I suffer with a lot of symptoms, pain extreme fatigue and I’m in an electric wheelchair indoors, electric scooter outdoors, bladder/bowel issues, botox injected into bladder every 5mths, but it’s the fatigue I find the worse thing to deal with, this stops everything, I just can’t function, can’t even speak sometimes, it’s just awful, so if someone can tell me / help me to re-energise myself I’d love to hear it.
Good luck with you finding your way, take care and keep warm.
Jean x