• Brain: irritability, mood changes, dizziness, speed of memory, difficulty concentrating.
• Lungs: difficulty breathing, lung mucus, twice Covid/Pneumonia/RS virus.
• Mouth: slurred speech, swallowing problems.
• Veins: DMD immunosuppression.
• Leg Muscle: weakness, impaired balance, fatigue, ataxic gait.
• Bladder: urgency to urinate, bladder leakage.
*not all symptoms are solely due to multiple sclerosis.
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Hi muchthesamemuchness,
Due to being in hospital for 6 days with double pneumonia in February of this year, so far this year has been SH**E I’m SPMS, I don’t have relapses, I just decline and this year I seem to have got worse, I.m already in a wheelchair, have bladder issues, pain, fatigue
now my bowel has joined in, I now have to do a daily bowel irregation and all my existing symptoms are so much worse, so that’s how my years been up to now.
Jean
Fortunately not at all. NEIDA in MRI and recently walked 30k steps over a 2 day weekend. RRMS and 6 years diagnosed. On Tecfidera. No symptoms at all to speak of.
Started DMT - Plegridy injections this year - varying levels of flu like symptoms every 2 weeks, but better than the alternative, just have to remember to take paracetamol before the jab and for the rest of the day to keep side effects to a minimum. MRIs on 23rd to check for changes since the last lot.
I’m stable and feeling really good. This has been the best year in a long time (never takes any medication or therapy). My syptoms:
- bladder and bowel control (since 16 years)
- foot drop (since 5 years)
well my wife was diagnosed 32 years ago just when she qualified as a Nurse??? but we have been on a long journey good an very bad
we moved to Bulgaria 19 years ago and she has had a better life here than she would have had in the uk ,the freedom to go out safely etc but in the last few months she has deteriated so much ,excessive tired sleeps 18 hours a day no energy etc this we are not used to we have a pool and we swim every day up to 3months ago ,her legs are so weak ,i have always got steroids etc over the counter here and stopped the attacks and we carry on what do you do when it gets to this stage ??? what do you take??? we always knew it would happen but the rapid decline has shocked me , obviously i monitor evrey year and monthly but this is so fast ANY HELP Please
I personally think everyday exercise prevents MS from rapidly progressing. Maybe if your wife can return to swimming, little by little it will help in her rehabilitation possibly?
Yes, same here. On Plegridy since January 2024. My MS is now inactive. Other than the side effects of Plegridy (flu like symptoms), I do not have any major issues because of my RRMS. I take three exercise classes per week, I can manage over 90% of the exercises without problems. Yet, in 2020 I had optic neuritis for months, and in 2022 both hands went numb for 10 months. I feel that plegridy is working and protecting me somehow. Xx
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