Good morning, I was diagnosed RRMS in 2011 and that was ‘upgraded’(?) to SPMS in 2019.
I live in Republic not far from Cavan.
I’m trying to make links to fellow MS people here.
I am on Ocrevus DMT, next infusion is July I believe.
My symptoms are gradually worsening, I’m looking into support for a mobility scooter,
But besides that, the sun is shining and I know I’m not alone.
I hope your day goes well,
Kind regards,
Daniel. (43 yrs old)
Hi Daniel, diagnosed some 18-19 years ago (RRMS and I suspect now SPMS - although to be honest I’m not sure there is a hard distinction between the two). it took me a while to accept the idea of a mobility scooter but once I got over that hurdle I now actually enjoy using it . Not so much in busy towns ( pedestrians keep getting in the way 
) and it can get a bit chilly just sitting on it in winter, but it’s great on quieter village roads and tracks.
Hello Daniel, you are not alone. I too am new here after receiving my RRMS diagnosis in 2015. My most recent MRI (February) shows that my MS has worsened, thus my neurologist prescribed a stronger DMT than the Glatiramer I took for several years. I am quite apprehensive about beginning Kesimpta.
While I knew that the MS would likely worsen over time, I don’t think I adequately prepared myself for it. The emotional impact of the present moment is more painful, I find, than the physical symptoms.
Everyone keeps telling me that Kesimpta is only hard to bear when you’re in the loading dose stage, and that I need to stop worrying. I experienced the “common” flu-like symptoms with my first loading dose, and took the second loading dose this evening.
I am trying to remain hopeful and positive about this new reality, but it is difficult. I know how you are feeling, so, yes, you are not alone. We will get through it!
Corrie
Birmingham
Hi Daniel,
Welcome……
I’m also 43, I was diagnosed in 2007 with RRMS but then in 2016 told I have SPMS. I had to give up work in 2022, I also on Ovravus. Currently I struggle mainly with Mobility and balance. I do use a rollator and use mobility scooters if I’m out with family (usually zoos etc offer scooters to hire). I live in beautiful S Wales, and live by the mantra ‘enjoy the good days, get through the bad’.
CERI