I have been diagnosed with RRMS in January 2018 but I have had symptoms of MS for the past 3 years but was originally diagnosed with Non Epileptic Attack Disorder. But i was told in January the diagnosis regions have changed and i can now be confirmed as having RRMS. Since I was diagnosed i have so many mixed emotions, on the one hand it does suck its confirmed I have MS but on the other hand I feel a bit better now people not thinking im overreacting about how tired I am or having to hide my tremor attacks from people.
My real issue is the fatigue. I feel like I’m running out of ways to deal with it and its affecting me in a big way.
I currently work full time but I get so tired during the day that I can’t concentrate and feel like I have to sleep right there and then. Everything just feels really heavy as well, especially my arms. I feel like i have to hide how tired and weak I am around work and when im out as I don’t want to be treated differently and for people to think im playing on my MS or to feel sorry for me. I always plan to go to the gym or do some sort of exercise during the week after work but by the time 5pm rolls around the work day has just zapped me of all the energy I have!
When im at home I feel like all I want to do is sleep. I hate this feeling as im only 27 and im living with my boyfriend who enjoys going for walks and gets up early in the mornings and I just feel I cant do as much as him. Im afraid it may affect our relationship too. He says he loves me and is there for me 100% but surely theres only so much someone can take of being with a constantly tired girlfriend?
Im not on any medication at the moment as my consultant and MS nurse believes they would do more harm than good at the moment for the type of RRMS I have.
Has anyone got any suggestions as to how i can improve on this or what I can do?