Hello, its a long time since I have written a post on here... for the past year I have been suffering with lots of different symptoms which all point towards MS, but I have now had 2 MRI's and nothing to show!! I have an amazing Consultant who has been determined to find out what is wrong with me. After the MRI's he wanted to go through a series of tests just to eliminate everything possible. Now a few months on and after a muscle biopsy I have been diagnosed with mitochondrial myopathy. The main symptoms of mitochondrial myopathy are muscle weakness and wasting, and exercise intolerance.
I am absolutely gutted and can’t stop crying, there is no cure and the disease is quite progressive or far more so debilitating than MS.. it is also affecting my swallowing and I am starting to choke on my food. I keep thinking of how worried I was at the prospect of having MS and now I am wishing that I have it..