I really want to be brave about my MS diagnosis but today it is really hard. I had a bad fall in the middle of the night and now I’m worried about getting up in the night for the toilet. The DVLA phoned me today and I am going to surrender my licence which I actually think is the best and safest thing. Then i rang DWP to add to what id already told them that I am reliant in my husband/ wheelchair in getting to the bus stop. Ive only been diagnosed four months and I was being so brave at first but now I just want to cry. Everything has changed so much in a year.
Well my heart goes out to you, this condition is awful, I’ve recently put a post on myself about how fed up I am, I’m spms and have it 16yrs. I really hope you find your positive side again very soon, chin up love.
I’m so sorry you’re having such a rough time. It’s tough thought isn’t it, I try to stay positive but it’s impossible all the time, don’t be hard on yourself, it sounds to me like you’re doing brilliantly. Look after yourself
you too love, x x
That’s a lot of body-blows in a short time; no wonder you’re reeling. I hope that life gets quieter and much nicer for you soon.
Hi I know it’s so hard I have days when I’m in tears most of the day, for me if I have something to look forward too it gives me a goal,I have had a few months where I doubted I would always feel ill everyday
but the day I went out on electric Trikecycle to the local bar which took a few hours my Husband suggested it I wanted to hit him!
I felt so I’ll but it was brilliant, some days life does get better you don’t have to be brave all the time it’s an awful illness some days it’s hard it will get easier to cope with in time
Just wanted to send hugs your way and say I hope things improve soon for you. Take care xxx
I have been thinking about you over the last few days and was wondering how you are. Sounds like it has been a bit tough of late. Falls are so scary, having recently had another fall myself. Good idea to let the DWP before they sent out their decision.
It can be so hard to give up things such as driving because of not feeling safe. I now only drive through necessity, just find it too stressful.
Can you use a scooter to get out and about or are you totally reliant on your husband to push you in a wheelchair?
Just to add, there is no shame in crying, we all have brave days and days where we are trying to get your head around things.
Sending a little positive hug this morning.
Take care x