I too am somewhat confused about the symptoms coming and going, but then I’m confused about lots these days! I too am not diagnosed with anything yet.
Does anyone else lose their thread when talking. I find myself doing this a lot recently, I’ll be chatting away and then can’t for the life of me remember what I was going to say, people look at me like I’ve suddenly grown two heads! also I will go into the kitchen etc and then can’t remember why I’ve gone there. I’ve always been so good at multi tasking but now cannot function without lists.
With the symptoms coming and going, I have just come out of three months of heavy leg, trembling and tingling/vibrating arm and weakness of arm (couldn’t hold a cup) and twitching eye, loss of balance (worse than normal). These symptoms were there all the time although some days were worse than others. I am understanding it right that these symptoms would not vary at all if it was MS?
Last week or so been feeling so much better apart from stiff calves, until yesterday. Sunday, Monday and yesterday morning extremely busy, shopping, housework etc didn’t stop at all. Then yesterday lunchtime bang, weak leg and arm back, tingling in right hand loss of balance, exhausted and also something new which I don’t know if related. I feeling of complete dizziness. I have nbeen unable to walk unaided , veering side to side, nightmare, Ihad had such a good week and had convinced myself all was well. Could these symptoms fit with MS, I think from other posts perhaps not. Feel so rubbish today, mentally aswell as physically as was so excited to have felt so well last week.
Hi Debbie I am probable MS and often have days when I go in the kitchen and don’t know why I’m there. Also stopping in the middle of a sentence can happen sometimes. Your question about symptoms coming and going. Well I always have my symptoms but some days are better than others and also I had terrible twitching legs and feet in May/June, well I only get the odd twitch now and then at the mo’. Huh Teresa xx
No, I don’t think it’s right that they wouldn’t vary at all.
I’m diagnosed (RRMS). My symptoms vary if I get tired, stressed, excited, among other things.
I have symptoms that are persistent, but NOT continual. For example, I’ve had tingling hands for at least a year or two now. But not tingling every moment of every day. Mostly, it happens overnight, when I’m sleeping, and first thing in the morning. I now regard this symptom as “permanent” - i.e. never going to improve. But there are lots of times I don’t have it. Sitting here typing this, it’s fine.
Definitely a good idea to go and talk to your GP, and to get a referral to a neuro if you haven’t had one already. Your symptoms do fit with MS, although there is a good chance that they are due to something else.
MS is not the same every day - symptoms vary quite a lot. An attack of MS generally causes a number of symptoms (one or many) that last for a specific period (often weeks), but during this time the symptoms are worse some days than others. It really depends on the symptoms. What doesn’t tend to happen is that every day there is a different symptom.
When you said, “I have just come out of three months of heavy leg, trembling and tingling/vibrating arm and weakness of arm (couldn’t hold a cup) and twitching eye, loss of balance (worse than normal). These symptoms were there all the time although some days were worse than others.” - you did a very good description of a relapse.
Cognitive problems are common in MS, so most of the MSers on here can empathise with your memory and word-finding problems. They tend to be worsened by fatigue and dealing with pain, so once you get some help, you might find that things aren’t quite so bad. They may well still be there, but there are tools and methods to help.
You can’t see your GP until January?! That’s crazy!
Did he offer you some meds for the vertigo at least?
I have a feeling that the neuro was being more reassuring than truthful. It’s not normal to have brisk reflexes on right, mild ataxia & balance problems so it’s highly unlikely that there is nothing wrong. Let’s hope the MRI can give enough clues to work out what it is. You never know, it could be something that’s fixable!