Sorry Bambi lol :)) and thank you hope for your kind words x
Hi Shellie, me again!! Just read thread about life expectancy, nobody, with or without illness can answer that!!! Dont stress yourself out hun, these thoughts are bound to run riot through our heads & they have in mine, but I have looked after people who have had it many, many years & know people who have had it many years & not one of them are the same. I have also looked after people who have “given up” & really should have been coping, but their attitude made them a whole lot worse. Feeling low can play horrible tricks with a persons mind, I know I totally flipped, but focusing on what I can do, not what I cant gets me through. Dont always trust what you hear, we are not textbook cases & experiences vary, trust in yourself girlie!! Hope you feel better really soon, Im getting there!!! Tracey xx
Thank you so much Tracey, you make alot of sence. I’m going to try and focus on tomorrow, and not 10 years down the road! This will be step 1 
xx
Hi Shellie, did you hear from your ms nurse?
Glad to say, none of us knows whats ahead of us Shellie & Im glad!! You enjoy your lovely grandchildren. Think thoughts of happy!!! Your still you, no matter whats going on, that MS cant take!!! Think positive girlie, it infectious! Put “nasties” out of your head & look forward, dont worry yourself about things we cant change. Stress makes this b***** worse!!! Hope you are really feeling better tomorrow, it is another day!!! Tracey xx
No Nanny, bit rude lol. I’ll phone again in morning x
Tracey, the amount of councillors I’ve seen, and in one afternoon on here I feel like I’m getting somewhere. The last one, I saw her 3 times, and she was yawning all the time, so on the 3rd visit I left after 10 mins and told her to go have a lay down with my remaining 50 minutes!! Thank you honey xx
Unless the councillors have this Shellie, they cannot understand it!!! I CANT understand it & I studied it before I was diagnosed with it!!! All I know is we are not on our own, we are all joined by the dreaded monster, but together we make a hell of a force against it!!! We are the “real deal” our experiences are actual, not learnt from a book. WE make the rules here, WE give the advice based on “actual events” not scenarios!!! When people are part of a “unique!” cliche we can move mountains!!! Dont ever feel alone again girlie, your not!!! As for the yawning councillor, better not!!! Tracey xxx
I have not heard that about life expectancy. As far as I understand it is about 6 years less for PwMS. Having said that no one knows so better to just live each day to the full, as best you can.
Like the way you dealt with the councillor! Hope you were able to give some feedback to someone to.
I’m sorry that some of you have had bad experiences with councilors.
I have had a clinical psychologist for a few months now and no he doesn’t really understand MS but he listens. He is the only person I am completely honest with about how I am feeling/coping. Everyone else around me would be affected by my gloomy thought so I keep them to myself. It is very refreshing not to have to put on a front and admit to being scared and overwhelmed.
I’m not saying psychology has all or even any answers but it helps to get things straight in your head by talking them through with someone who is outside your circle.
Jane
hi jane
i was glad to read ur post-i was feeling a tad sorry for councillors! the only way that anyone can understand how ms affects them (socially,physically and mentally) is the person with ms. councillors can give u suggestions,new ways to approach issues in ur life (with ms or not) but they dont have magic to make everything ok-thats down to self. our own thoughts give us more stress than we like to admit! but addressing them certainly gave me a ‘head start’ in coping to live with my ms-and am glad its help u too-genuinely.
i feel **** (cant think of right word!) for those that think the doctor or someone else will sort out ur issues…unless its a dr with interest in counselling!
ellie x
Not sure if I have this right, but I wasn’t dismissing councillors, just what happened to me and me alone. I wish I had found one that was interested in how I felt, rather than me boring her, and her nearly falling asleep! Just saying. Sorry if it peed anyone off, truly. Xxxx
hey shellie
sharing of experiences can only be a good thing. ur story makes me gggrrr cos this councillor sounds well out of order. the fact that even more folk recall negative tales is alarming. ‘someone’ (i have no idea who!) needs to wake up to the shoddy service that those needing help/support/care are really subjected to. cos counselling if delivered correctly is can be very effective.
hope you find someone with big ears and open eyes soon.
ellie x
Ellie, it was so distressing 3 times she did that, granted I did go late in the day? When she was awake, she asked if I’d been abused, does my husband hit me, are my children on drugs??? Being new to councillors, I didn’t no what to say, except laugh However I do have a great Dr. Thank God! And to be honest. Reading posts on here, from all different mssers, strangely makes me feel a lot better, and more on the way to acceptance, as it’s not just me, you see I don’t or my whole family know of anyone with this, so shock wasn’t the word. I just felt so isolated if that makes spence? Thanks for your words :)) xx
Hi all, been in touch with MS Nurse, he said to go have a septic screen at GP’s, then get in touch again to be seen in clinic, as I may have an infection somewhere? As far as my depression, it could be Rebif related, so he will need to look into this when I see him x
Hi all had MS for 10 years (seems longer) but from day one I told anyone who asked and some who didnt what I had.I think with a positive attitude and an its not going to beat me way of thinking this helps.I was also a teaching assistant in a special needs school and as soon as I coudnt cope in the classroom my headteacher found me a job in the office.I am still working at the moment but im going to retire in July as I will be 63 not because of the MS.I think you should try to get back to work as soon as possible. Be honest with your work collegues if you are struggling tell them,you may be suprised.My friends at work are brilliant but dont let me play the MS card (as my daughter calls it) to often.I also downsized from a house to a groundfloor maisonett and coudnt be happier.As for CBT I found it no help at all.The councellor was a very young Australian girl.Seemed ok but I didnt like her attitude so I said thanks but no thanks.I go to the National in Queens Square London and they coudnt do more.I hope you will feel able to return to work soon and find yourself able to talk to someone.
Regards Zoe.
Thanks Zoe, and happy retirement to you I think being 30 and pregnant when I was diagnosed, hormones and emotions were flying everywhere! Being young I didn’t want anyone thinking of me differently, at my age now I don’t have that barrier, if that makes sence? I hope to return to work, but am not sure if I’ll cope xxxx
Hi Shellie and Hope,
I’m a teaching assistant too! Wonder if there is any connection? Maybe our body tells us which career to take that goes well with MS. - Shorter working days, weekends off and lots of holidays at convenient times in the year to recharge our batteries!
On the down side on being diagnosed I was advised never to work with children - to many infections going round our weakened immune system!
Jen x
Hi Shellie and Hope,
I’m a teaching assistant too! Wonder if there is any connection? Maybe our body tells us which career to take that goes well with MS. - Shorter working days, weekends off and lots of holidays at convenient times in the year to recharge our batteries!
On the down side on being diagnosed I was advised never to work with children - to many infections going round our weakened immune system!
Jen x
Hi good luck Shellie I hope all goes well for you.I must admit since working in the office I dont get as many infections because im not in direct contact with the children.I used to get everything that was going before.
Zoe.