I’m aware that there are so many brave people here facing this diagnosis and living with it.
I am just so anxious and frightened at the minute. I’m in my early thirties and have a 2 year old. I noticed after she was born that I would randomly have a feeling of weakness in my legs. It would happen very couple of months but only last a few seconds and go away as quick as it came. It would feel like my legs would go weak and I’d have to sit down.I didn’t think much of it. I’ve been healthy all my life and just dismissed it as one of those things.
but then over the past couple of months I’ve noticed a tingling feeling in my right lower leg. It’s not as intense as pins and needles just more like a constant sensation. I rang the doctors last week who have booked me in for thyroid, full bloods and b12 test. I get the results next week but last night I woke up and my left hand was full of pins and needles and I couldn’t feel my fingertips. It eased off very quickly. But I still just feel so worried that I have MS. I don’t feel strong enough to face this
You have done the right thing by flagging the issue up with your GP. Maybe those tests will give a clue as to what ails. If not, and if you’re still concerned, there are other options to explore. One step at a time. I know it’s daft to say, but try not to worry. It might take a while to get to the bottom of what is going on, and it is usually a good plan to concentrate on the facts as you understand them - no more, no less - and try not to torture yourself by weaving a terrifying story around them. I heard someone on a podcast just yesterday saying that we think we’re afraid of uncertainty, but that actually uncertainty isn’t all that bad: what we’re afraid of - and rightly - is the apocalyptic narratives we weave for ourselves in the absence of certainty. Those are the things that really trouble us. This lady was talking about the Covid epidemic, but it applies just as much to many illnesses and the human condiiton in general. Try not to tell yourself made-up stories that will darken your days when you don’t actually have any idea what, if anything, is amiss. Easy to say, I know, but please try.
ive been to my gp and all my bloods were normal, which causes me concern as it can’t be ruled out as something clearly straightforward. She has suggested private neurologist appointment which isn’t until April as the waiting lists in my area are so long.
I mentioned to her my fear of ms and she said it is one of the considerations but if no family history the liklihood is low. I still have ongoing tingling in my right foot and left hand but that’s it. It’s really hard not to worry when u can feel the sensation. I know there’s nothing I can do but wait now. I’m a worrier anyway so this is just all so hard!
Hi. I’m in the same position. Same age and have 2 young children. I have been worrying about my symptoms for over a year and am seeing my GP today after all my bloods came back normal. Please let us know how you got on with your GP.
A consultation with the neurologist sounds like a very good idea. But even then it isn’t until April! Gosh, that’s a long time to wait for a private appointment. Never mind, nothing you can do about that. I’m glad you raised your fears with the GP - I do think it is better to give these things an airing than to keep them bottled up and festering, unspoken. I am sorry that the initial tests did not give you an easy answer, but it’s all progress along the road of finding what ails.
Thanks for your message. Yes unfortunately I’m in NI and the waiting lists here are insane causing such a long wait even for private appointments! It’s awful as it’s completely out of my hands. I would love to know either way but I can’t do anything about it. I have moments where I think I must be mad even considering I have ms because it is so far from my radar being young and healthy. But I guess that’s how everyone feels when diagnosed. I think I do need to not assume I have it because it’s so damaging living with that fear for no definitive reason. So going. To try my best to get on with life and hope April comes quick and that I have no other symptoms!
Yes, the trick, I think is to deal with what you know. You know the symptoms you are dealing with. You know the results of the GP’s preliminary tests. You know that you have a plan in place to seed specialist advice and you know that MS may be one of the options that he/she will wish to eliminate. That’s all you know. The rest is your mind making up stories. The emotional pain and distress that such stories cause is real enough, but the stories themselves are make-believe and nothing more. If you can, try to keep reminding yourself of that.
Hi I’m also in a similar position, and it’s okay to worry. One day at a time. I have had pins and needles all over, and more in one leg and one arm too (opposite sides) so that is very close to your symptoms. I have had two bouts of it now. The first time I decided not to push it with the GP, had bloods done and again, like you, was a little disappointed that it wasn’t something simple and treatable!
I also have a relatively young child and I am their only carer.
You are doing the right thing, going to see a neurologist and get everything checked out. I have just seen the neurologist and he thinks it is probably not MS and he probably doens’t know what it is. I was a bit cross to be honest when he mentioned stress (although to be fair he said it could be a number of things) - as there is a hint that I was making too much of my symptoms and was a bit patronising. If anything I’m someone who doesn’t trouble the doctor with anything and yet with these symptoms we really do need to go and get them checked.
However on the other side - I’d just say that you are more likely to be like me and even if we don’t actually find out what it is - we are probably not experiencing a serious disease. This forum has many people with MS and others who have - and are dealing with it so well it is inspiring.
It is hard being in this weird no man’s land where we don’t know what is wrong with us so you do have my sympathies. If it helps maybe just do something practical to help feel better? I lost a bit of weight, made my diet better. For me I saw it as a bit of a wake up call to take care of myself more.
I’ve still got to have another MRI and other tests but I feel much more optimistic and better. I really hope that are also OK - you are reacting well - going for the tests - finding out information - that is all you can do for now. Lots of sympathies from me though I know what you are going through.
Hey! Im also in the same position and have just had a baby 5 months ago - ive also experienced the leg weakness and it would go as quickly as it came if i sat down. Im so scared and also have a phone appt with the gp but she dismissed it all when i last mentioned it to her so im hoping she doesnt do the same. Its so worrying
