Hello everyone,
I have been reading your posts for a few days now, after a friend recommended the site. I’m hoping someone out there may be able to relate to what im going through or have any advice.
It been nearly a year since i started to notice things were not right. It started with bowel problems (a lovely place to start) and having never had problems before it completely came out of the blue. For six months the doctor perscribed many different laxatives, put me on different diets, told me to avoid certain foods but it just wouldn’t go away. I was battling pain on and off in my left side and leg and the frequent need to urinate, this was put down to my stomach problems and told it would go away but take painkillers .During this time there were many trips back and fourth to the doctors untill finally the doctor said i’m sending you for a scan of your stomach. The scan showed overloading but they couldn’t understand why as there was nothing physically blocking it. I battled on for another month before the doctor referred me to a specialist. The specialist perscribed prucalopride and sent me on my merry way.
Then the nausea started, it was so bad that at times it was making me physically sick and also felt as though someone was squeezing me (like a balloon about to pop). Once again many trips back to the doctors begging them to make it stop to which a doctor said am i sure i’m not pregnant. ( i wasn’t). I was sent back to the specialist who said it wasnt the tablets but he could take me off them to see if there was any improvements. After two weeks he put me back on the tablets as constipation became a problem again. The nausea just stopped as quickly as it started but when i recently had two bouts a few weeks apart i was told i might possibly have a stomach bug without the upset stomach. I tried to explain that it comes and goes and is not constant throughout the day, doctor looked at me like i was mad and said it a stomach bug and they cant give me anything for it but make sure i stay hydrated.
The past few months i noticed i was having trouble with my speech, forgetting words and mixing up sentences. I struggle with my short term memory but was afraid to do anything apart from laugh it off as i was convinced people would think i was going mad. I thought i was hiding it quite well with my strange coping mechanisms but apparently not.
First my boyfriend told me how worried he was, then my colleagues pulled me aside and said they had noticed i was having trouble with my memory and slurring my speech alot.The final straw was being pulled in by management and told how much i had changed and they find me difficult to approach. I feel as though i’m being asked to do something about something that i have no control over. I went back to the doctors who said he couldnt give me anything but would refer me to neuro and did i think i was depressed. I mean how difficult is it to explain to someone that you don’t feel depressed but frustrated with the life you now have.