Hi everyone.
I was diagnosed with MS in 2010, after a Stroke. All was fine until two years ago when my Wee machine stopped working. So they fitted a Catheter and where it’s been removed and refitted four times after suffering relapses within Twelve Hours.
Then the Poo side stopped without strong Laxatives. My walking is only very short distances or my right leg goes like jelly and then I fall over.
I have a sick Wife to care for too and without any help from the State. I paid my taxes and stamp all my life, so why now should I have to display all to qualify.
Now the Hospital want to do an internal examination of my Bladder and which now makes me feel so old.
Does anyone else have these symptoms ?
TR
Your not on your own! It is horrible and insulting you (may)have to prove disability. I’ve had a Catheter for x3yrs and find the benefits are far outweigh everything else despite being 58 (tried everything, (have the good/bad memories) - dignity, dry, sleep.
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Yes one’s dignity has long gone, apart from the obvious urges. I’m 73, married four times and have 7 to 8 children. Rallied and raced cars. Flown Gliders and a couple of short runs in a Cesner prop aircraft.
First Wife produced four, then got bored because I wanted to build our empire. She had an affair and went off. The second had acute Post Natal Depression after having our two children, but then went totally off the rails and which ended our marriage. The third was my Children’s Nanny, some 16 yrs my junior and was the love 
of my life.
Sadly misdiagnosed during the final stages of her pregnancy and died aged just 29. My final marriage was great until she suffered a Stroke, leaving her with Acute Anxiety Disorder. Then my MS hit and it was game over.
I’ve owned and run TV and Building Company’s Businesses. However now confined to my home, except for light shopping.
I just wish the Doctors would talk to me with some constructive dialogue. However I think they’ve used Covid19 to run for cover.
What do you think ?
Terry
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Thanks for your ongoing issues and sorry they’ve plagued you so much.
I was a Businessman up to a few years ago and still run my late Wife’s Charity, a Not for Profit Company and working ,by email, with a London Studio who are preparing to make a Movie from her Autobiography “ Shattered Dreams “. It’s all about a happy go lucky very young Nanny, who falls in love with her Boss, being me.
We marry and a year later she’s due to give birth, only The Consultant miss diagnosed her Preclampsia and as a result she eventually dies, aged just 29.
So although I remarried 26 yrs ago, pledged to continue her Charity and assist The Film Company in making her Movie.
To be honest one of the worst parts is our sex life stopped over a year ago, with the Catheter fitted.
Have you any ideas on that ?
Still concerned about the Camera thing into my Bladder as they say there’s a dark patch in my bladder. Obviously don’t want them tampering with it because of you know what. Any ideas on that too ?
Take Care
Terry
Hi TR. I truly sympathise. I was diagnosed with RRMS in 2014 (had a stroke in 2002). I have recently had a faecal accident whilst walking back from the doctors. A seven minute walk! I was caught between the two places. My bowel is generally constipated, but this time it had the devil about it. I am off sick at the moment, with no hope of even speaking to GP. Luckily, I have a bi-annual telephone appt with my MS consultant next Tuesday. All I can say, is be more assertive with your Doctor, and insist you need help. Take care. Alison
Have you contacted Age UK? They offer a Counselling facility that might be of use to you and, I think, an Advocacy service which might help with the GP side of things. Being able to shout out on this site will get you a lot of ears to listen and no judgement.
mine is constipation, i use a glycerine suppository its bliss. its natural too so the doctor said i can use them when i need too. I would be bunged up otherwise lol. xx
Hi there and hope you are as well as can be expected, under the circumstances.
Just wanted to give a bit of an update.
I was speaking to a Senior Nursing Manager a week ago and mentioned about my constipation.
She explained that each end will block the other by leaning on them as they fill. As a result one ends up constipated.
She advised me to take Prunes twice a day and which should do the trick.
So I bought a few packets from my local Coop and did what I was told.
Within a day I started going to lavatory at least twice a day. My Wee through the Catheter has also increased. The Nurse will be out in three weeks to change it, but I’ll ask her to take it out and not replace it. Then ring later in the day to say if I am going without or not.
Anyway it’s worth a shot, so maybe then some ‘Nookie’ might be available again.
Have a great day.
Terry
I may have found an answer to constipation.
A Senior Nursing Manager suggested I take two to three Prunes twice a day.
They work very well, so my next gamble is having the Catheter taken out , whilst keep taking the Prunes. Then see if I can go from both ends and if so ,may not need a Catheter so often.
Fingers and everything else crossed.
Don’t forget to take Prunes as a trial. Apart Tinned variety, The Coop sell them in a resealable bag.
Good luck and will update you when I try going without the Catheter in.
Terry
Prunes work for a while but they cause immense pain in my stomach too. I had to stop eating them. I only ate a few at a time. will try again now i have had a break for a few months. However, I eat a lot of fruit and fibre i love it. I should really poop for england, but it would appear my bowel simply is not working. My neurologist told me its classic with MS. great.