I have been following your site since April 2014 when I was diagnosed with RRMS after what I thought was a stroke. I’m a 32yo female. Since that time, I have had several relapses and tried a few different meds which didn’t agree with me (with the second one leaving me bed ridden for a week). My last relapse was in June. I developed severe vertigo (which I still haven’t fully recovered from) and complete numbness down my right side and had to go into hospital for IV steroids after I refused to take them orally again. On the plus side that led me to start fingolimod which I have found gives me no issues. I am on a number of symptomatic meds…some work, some don’t.
Mobility comes and goes and I’ve had to reduce my hours at work as I kept falling asleep at home suddenly and no one could wake me until I was ready to come out of it.
I have a really good doctor and ms nurse who I can contact at any time. I’m not one to tell people what’s going on or complain if I experience something different and will only really say something if they ask.
My biggest issue and annoyance at the moment (in addition with having to deal with the random other stuff) currently is constipation with the odd accident (like at a bus stop, just before getting on the bus) and bladder issues. I go from not being able to pass urine to just utterly wetting myself (most recently on New Year’s Eve in front of my mother) The urologists want me to self catherise, which I can’t bring myself to do.
It’s always nice to read that people just deal what is dealt to them on a regular basis and just try to get on with it. And that I’m not the only one who gets the most random symptoms and how you deal with them x