This is my first post, I’ve had MS for about 30 years my first attacks were when I was 18/19. The first 10 years it was RR after that it moved to secondary progressive, I’ve now been in a wheelchair full-time for 10 years, I can’t weight bear or use my left arm, my speech can be quite poor several hours a day, sometimes all day.
For over 20 years I’ve been constipated can I say quite badly constipated, my stomach over the years has become huge and the bowel is massive (jungle drums can be played on it) (I’ve had 2 colonoscopys this year, nothing dangerous found other than a very large bowel and a lot and I mean a lot of POO, my wife has been saying for many years, I’m full of S*** and yes I am.
Just recently I had a reinsertion of a suprapubic catherter and removal of bladder stones, I was told it would take 25 mins it took 105 mins. I knew I had bladder stones but I was shown was was crushed and removed, I’m going into the industry for gravel ling peoples drives.
Well after that I had to use the qufora bed based system (anal irrigation) every day and at least 3 times in the morning session. I take 6 laxido sachets per day as well as 2 other constipation medicines.
My repeat prescription list is 25 and over per month. Does anyone else out there with MS have the same kind of problems, I have. I’m getting very disillusioned with all of the potions as I’m only 49 and I feel that I’ve been left behind.
End of rant, that took ages to type with one finger.