Hi everybody. 
Ive never posted on anything like this i guess im called a “lerker” shall we say… Im not diagnosed but i shall try (as best i can) keep this short… So last year i started getting weird sensations in my toes…like pins and needles but it would last ages and feel really heavy and strange I ignored it. About a month before Xmas i started to get numbness down my right arm and leg and more like tingling sensations…Thought to myself it was odd but it started to happen daily… Then i started to get a “crawling sensation” up the mid section of my back…I had my daughtwr 16 months ago so i put it down to nursing and lifting her untill it was happening more often 
I then started to notice i wasnt urinating as much as i used to but the urgency was greater and a little incontinence…again…put it down to being a new mum and busy and working. But then at work i started to find it really hard i was getting aches and pains everywhere including numbness but my pain was onesided and located around my kidney area. Went to docs for the pain and mentioned numbness…sent for a kidney scan, revealed right kidney is enlarged and backing up with urine So referred to urology… As for numbeness,MRI on head and whole of spine… Saw urologist he said with the scan results it looks like it could have been something o have from birth or trauma of childbirth so wants to do Nucleur medicine test and bladder function test…Waiting game. Had my MRI last saturday to “rule out MS” as the doctor said… Ive also noticed bloating really bad and my glands in my neck and groin have been swollen for aslong as i can remember…Like i say ive shrugged these symptoms off being a new mum… But im scared…even my tounge underneath and my gums feel tingly and numb and my upper back. I feel breathless and have sharp pain under my right rib…Im in some sort of pain daily and i feel im always down the doctors…and they must think im some sort of hypocondriact… Its starting to affect my quality time with my daughter as im ao cosumed by all this and feel washed out and in pain always. Most of whats going on does seem very one sided…I guess my question to you lovely people (and i know its different for everyone) If MS strikes like this…And how long normally does an MRI result take? I feel so lost and so lonely right now. I feel ive been ill and in pain for so long that ppl have give up caring because its ongoing and im not better…they forget im in pain daily…its so upsetting… Thank you for reading xx
Hi Kay, don’t think I’m going to be of any use as I too am in the land of not knowing what the heck is going on with my body anymore. I also have a young daughter and to be feeling the way you do and being a Mum, well done, it’s not easy. I had my Brain MRI almost 3 weeks ago and I still haven’t heard anything. My first MRI I had the results on days but was for something else and turns out it wasn’t very thorough anyway. I have to tell you, the waiting doesn’t get any easier, my stomach drops every time I check my post box, I’ve worried letters could have gone elsewhere, called the Consultants secretary who works a ten minute walk from me and asked if I could collect letter as soon as it’s typed to no avail. It’s hard to not obsess and google every symptom and digest what little information you have but try to be patient. It’s so hard I know but please try. It’s not good to stress and from what I’ve read, this is only the beginning. Enjoy your time with your daughter, enjoy a soak in the bath or a favourite movie, set yourself achievable goals, don’t expect too much of yourself whilst you’re in pain and give yourself a pat on the back for keeping it together when times are tough.
Ah, I wish I could say something to make you feel better but I’m in the same boat! I suppose I just wanted to let you know that you’re not alone!! I cry daily! I have 3 children all under 5 and there’s literally not one minute I get alone even when my husband is home. It’s not like work where you can call in sick is it
The journey is likely to be a long one but I hope and pray everything goes as well and smoothly whatever the diagnosis. I recently went private for the original consultation in hope they’d put my MRI on the NHS a bit quicker, that does seem to happen for a lot of people and was offered to me!! Otherwise I had to wait 27 weeks JUST for the consultation through the NHS. I don’t mean to seem negative I just want to be honest. Hopefully your local gp/hospital are a lot quicker.
im sure someone on here can give you advice because they’re all so nice, I’m just sorry I can’t help as I’m in the exact same position.
Like you I feel very lonely, like I’ve almost been abounded because nobody understands and there’s only so much explaining to people how you feel. It’s such a difficult time, you’re not alone. Sorry I can’t offer more words of comfort.
Let us know how you get on.
Tanya
Hi Kay and Kay
KayTJay is right, it’s really not easy being in the land of not knowing what the hell is wrong. Aka limbo.
The real problem with MS is that there are so many potential symptoms that could lead you towards an MS diagnosis. And many of these symptoms are shared with other diagnoses.
So, the length of time for a doctor to review an MRI, probably minutes. The length of time for him/her to relay these results to you, as long as a piece of string. Generally a neuro is not likely to diagnose MS in a letter, and most likely they’d call you in for an appointment even if it’s to tell you that it’s not MS.
My neurologist is currently so busy that my late morning appointment was recently cancelled and replaced by one at 8.45pm. This is due to the sheer numbers of patients. He has recently gained another neurologist to pick up the extra appointments, but there are still more patients than appointments.
So, all you can do is what KayTJay is doing, i.e. talking to the neuros secretary, trying to get shoved up the queue a bit.
And Kay09860, it does sound like some of your symptoms are neurological, but if they’ve already picked up a kidney problem, it might not be MS, it’s possible that something else is causing your problems. I don’t think you should be worried that the doctors will think you’re a hypochondriac, it’s obvious that you are having a miserable time at the moment.
I truly hope both of you Kay’s get some answers soon. But in the meantime, try not to worry too much after all, there’s no real benefit in getting stressed by the wait. (I know, easier said than done!)
Sue
oh dear Kay and KT
what a dreadful time this is for you.
i’ve been lucky because my diagnosis took 12 months from first seeing my GP to being told that i have rrms.
also lucky because my sons were 19 and 20.
you should take comfort in cuddle therapy and try to take it easy.
we all know that taking it easy with babies around is difficult but it can be done.
accept all offers of help. people really want to help and love having time with someone else’s babies.
forget the dusting it really doesn’t matter in the grand scheme of things.
the results will come in their own time and there is no reason for your health to decline drastically.
in fact once you have a diagnosis it seems to stabilise, it’s the worry and stress that make it seem so bad.
looking back i had weird stuff happening from age 12 onwards so probably had ms longer than i knew.
and in the end you might not have ms anyway.
carole x
Bless your heart. It’s awful not knowing. I have no answers myself. And it is hard having an 11 year old so you must really feel the struggle.
what a wicked world we live in. I am honestly a kind loving person. We don’t deserve this.
All my Love x